The Joys of having CF

The Joys of having CF

Tuesday, May 10, 2011

Just A Bump In The Road

Okay, so I hit another bump in the road about a month ago(thankfully after my Make~A~Wish trip). I'm 99.98% positive I have pnemonia-especially in my upper left lobe. *sigh* BUT that's okay. Just because I hit another bump in the road doesn't mean it's a bad thing. I was on my 28 day cycle of Tobi, so I did it a little longer than 28 days. Then I did a 2 week dose of Bactrum, and upped my VEST to 3x a day when possible. of this very moment. Not any better-if I must say so myself I think maybe a little worse. So I go in for my normal every 3 month visit tomorrow(Wednesday), and we already called ahead, they ordered a X-ray to be done, and said bring a bag just in case-and that they won't order a bed yet. So, if the X-ray looks bad(which by how I feel i'm sure it won't look to pleasent) and if PFT's are down(which by the way I feel i'm thinking they won't be the greatest) I'm probably looking at a 1-2 week visit to my new! hospital/clinic(sidenote-my clinic/hospital that i usually go to, joined with another hospital to make one big university/clinic/hospital--no big deal very exciting stuff) that just opened today. So instead of Fairview University Medical Center, I will not be going to University of Minnesota Amplatz Children's Hospital. Isn't that a long name. I was on their website today, and I clicked on the Cystic Fibrosis page, and they have the highest rated lung function for CFers ages 6-17 in the nation!!! I am so impressed and very happy to be going there.
So keep me in your thoughts and prayers, and whatever shakes out shakes out. No big deal. Just all part of the life of having CF, we go to the doctor, sometimes the hospital for a week(s) and then we just continue to live our normal day to day life. Honestly it has become a routine for me.
So what's a post w/o pictures: here's what my hospitals looks like that I go to and have gone to, and just a cute picture just because :)

This is Fairview(where I used to go to,
and will go back to when I'm an adult).

This is my new hospital that i now go to
the clinic is somewhere else but this is the
new addition and the hospital-the rooms
look huge from the pictures, and are very
cool, and i believe that is all glass. And below
is of the front enterance-different view.

And last but not least, a picture of my baby, who just got a haircut last week and looks like this again :) If I get admitted I will miss him like crazy! He is the light of my life. I just love him so stinkin much! I mean who can't love this face?

I will keep everyone posted. Have a great day. ~God Bless


  1. My thoughts and prayers will be with you....take care.