Having CF, you really don't know what a "real" breathe is like. To someone with CF the breathes we take are "normal" to us. We don't know any different, and someone without CF doesn't know any different either. Well, the other night while I was doing a VEST treatment, I was thinking, wouldn't it be awesome to take a "test drive" and see what it feels like to take a "real" breathe. Wouldn't that be awesome? To trade places with someone who has no breathing problems and see what their lungs are like, and they can see what ours are like? I think it would give them a whole new outlook on life. I just kept thinking about that....What If? What if?? SOON there will be a cure....SOON!!
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Contact: paige_cf_94@yahoo.com
The Joys of having CF
About Me
- Paige
- My name is Paige. I have Cystic Fibrosis. I am a fun loving, small town girl with big dreams...trying to live my life to the fullest. I am a Christian. My family is my priority. I love to travel. I want to see the world. I enjoy spending time with my family & friends. In March 2011 I went on my Make~A~Wish trip to the most beautiful island in the world, Bora Bora. I have written a book called, Growing up with Cystic Fibrosis the first 13 years. It's about living with Cystic Fibrosis (an incurable illness). I wrote the book to help people. I have recently started to get involved with public speaking. I believe that my purpose in life is to help people, and to make a difference. I believe that God put me on this earth for a reason, and i'm not going to let him down.
A Powerful Statement
"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer
Interested in my book?
Contact: paige_cf_94@yahoo.com
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