The Joys of having CF

The Joys of having CF

Tuesday, September 4, 2012

Clinic Update, Hospital, & 200th Post

A lot has happened since I last wrote. At the time of my last post I was going to the doctor for a checkup.  I had my PFT's and they were great, best ones I've ever had in my life. They were 98% which means I'm the healthiest I've ever been in my whole life.
Well after my appointment on the way home i started feeling very tired and wore out. I got a headache and everything. So mom drove home and i slept almost the whole way.  Well from there I got home and took a nap and by Friday I was sick. Not feeling good, headache it was horrible. On Saturday my headache was somewhat better but I started having this bad...cough.
Yep, lungs-great. See, whenever I have a great PFT, i somehow always end up sick after. I think the test triggers something in my lungs. Well by Sunday mom had called the on call doctor and he said go on Tobi. So i did and by Wednesday I just was not feeling any better. So mom called on Thursday and they wanted to admit me to the hospital on Friday.
So Thursday I packed and on Friday mom and I headed to the hospital. I got my PICC line-with no sedation-which was a shock, and thankfully i had a doctor put it in, and it was the easiest PICC ever even with all the scar tissue. The doctor was awesome and it was in in 15 min. Then I got back to my room and we started my antibiotics. Levaquin (the usual) and Meropenum (spelling?).  So I was there until today (Tuesday) I was supposed to go home yesterday (Monday) but w/the holiday things got miscummunicated. So we came home on home IV's for about 2-3 weeks, and I'll be good as new. I feel better already and I'm going to the gym Thursday :) So excited to go back.
Wow; what a long update. I'll try to update more often and post pictures soon. I have to go do my VEST and 5 Neb's (Albuteral, another Neb (forget the name), hypertonic saline, Pulmozime, and Colimisin (spelling). Hope you all have a good night and it's a special post because it's my 200TH blog post!!!!! Thank you to all who read my blog. It means a lot!!!
~God Bless

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