The Joys of having CF

The Joys of having CF

Tuesday, April 29, 2014

4 days

I just wanted to do a quick post about what's happening in 4 days. In 4 days it's CF Walk-A-Thon time! I get excited every year when it gets closer to May, because May is CF Awarness month. 
This year I really dropped the ball on fundraising for my walk. I'm still getting personal donations from friends and family but I forgot to utilize my fundraising site. BUT, this Saturday rain or shine, my family and some friends will be doing the walk. I live in a smaller town so it is a pretty small walk but we raise as much as we can to help find a cure. 
Also, in honor of May being CF Awarness month, a couple years ago I was asked to be a "model" for my children's hospital and they took photos from me getting my PICC line, so they could show some photos to help those who were nervous and so they could show them what's going to happen and for teaching. Well I then created a YouTube video with the photos to help raise Awarness and I noticed the other day somehow it was private, so i changed the settings to public so hopefully everyone can see it now. Here is the link to the video:
I really hope it helps raise some Awarness for others. So turn up your speakers and enjoy. 
Lastly, I have had some people ask for my fundraising link, feel free to message me, or find it on my Facebook page. 
I hope everyone's doing well and staying healthy. 
Also, I go to the doctor on Monday for CF clinic! Fingers crossed for great PFT's. 

~God Bless 

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