The Joys of having CF

The Joys of having CF

Monday, May 5, 2014

"You're one of those Patients"

That's what I was told by my doctor today. Today started out normal, I got up, did my meds, my dad rode along with me and we headed to my dr appt. I felt great. I've been feeling the best I ever have been. I got to the doctor, checked in, and that's when the mood of the day changed-and not for the better. I went upstairs for my PFT's(pulminary function test), they checked my weight. I gained a little, which is good. Then came PFT's. I usually do a total of 5 tests(5 blows). My first one is usually lower since I just started,  like around 87% and then my best is usually number 4. Works like clock work every time. Well today I had a guy who only let me do it 3 times. No more. So my first blow was 87%, typical, next one was 92%, typical and my third one was 94%, and I was told-"you're done". I was not happy. I just started getting my numbers good. 94% was my old usual like 2 years ago. The last 2 years I've been averaging 98%-99% and 3 months ago I was at 100%. So needless to say my dr is now concerned. 
He asked if I'm doing anything different and when I said no and that I feel the best I ever have it alarmed him a little. 
I'm also one of those people that can feel wonderful and have an infection and pneumonia and not even know it, that's when he said "so you're one of those patients" with a smile of course. This is only my third appt with him. I love my dr because he doesn't believe in doing unnecessary antibiotics or X-rays unless needed, so we talked and agreed that in 3 weeks I'm going to repeat PFT's, and if their up then we're not going to worry. BUT if their any lower or the same then we're going to dig deeper to make sure nothing's wrong. I appreciate though that he doesn't want to give me antibiotics for precaution because like he said, if he gives me to many now someday when I may really need them I could become resistant. So that's how my day went, but I feel really confident that I'll raise my numbers in 3 weeks. I don't want to break my good stretch of being healthy, because this upcoming August will make 2 years since I've been in the hospital. I'm so excited.
Also I'm part of a small research study with my old doctor so every time I go to the dr for the next 2 years I have to get blood drawn(which I enjoy), crazy I know. Well today there were practice lab drawers. Now I always have a rule, 3 pokes and you're done because my veins are so bad. So they nicely asked first and of course I said they could practice, they have to learn sometime, the lady tried once, and missed, then the tech tried and missed, and the tech finally did it a third time and got it. Now I have a bruise on my right arm, but blood got drawn, not really painful so all is good. 
I'm going to stop rambling now but just wanted to give you all an update. Will write soon. 

~God Bless

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