The Joys of having CF

The Joys of having CF

Sunday, April 26, 2015

Walk-A-Thon Time

It is almost May?! Can you believe it. If you've followed this blog at all as I've said before May is my favorite month because it is Cystic Fibrosis Awareness month. This coming Saturday(May 2nd) is our local CF Walk A Thon. I am very excited to go and see everyone again. This CF walk will be a little bittersweet because one of my great CF friends will not be there since he passed away last year. He was someone I looked up to because he was one of the first people my family and I met who had CF. 
Anyways I wanted to share the link to my personal fundraising site. I didn't do much for online fundraising this year, but did personal donations. I get asked each year for my fundraising link, so if someone is interested in donating here is the link: Personal Fundraising Site
I'm still getting personal donations from friends and family but I always forget to utilize my fundraising site. BUT, this Saturday rain or shine, my family and some friends will be doing the walk. We live in a smaller town so it is a pretty small walk but we raise as much as we can to help find a cure. 
Also, in honor of May being CF Awareness month, a couple years ago I was asked to be a "model" for my children's hospital and they took photos from me getting my PICC line, so they could show some photos to help those who were nervous and so they could show them what's going to happen and for teaching. Well I then created a YouTube video with the photos to help raise Awareness and I noticed the other day that somehow it was private again, so I changed the settings to public so hopefully everyone can see it now. Here is the link to the video: PICC Video  So turn up your speakers and enjoy. 
I will write soon, and I will end with one of my favorite quotes in honor of CF Awareness: "life's not the breaths you take, but the moments that take your breath away."
~God Bless

No comments:

Post a Comment