The Joys of having CF

The Joys of having CF

Wednesday, June 8, 2011

Clinic Update

I apologize for not posting an update sooner. I went to the dr. last friday(june 3rd), and first thing i did was my PFT's. Well lets just say...WOOHOO, i am currently my healthiest i've ever been. My lung function was 96%. The last time we saw that number was last August. I am very proud of the number, and intend to keep it that way. So I saw the dr. and he added 2 more meds to my routine. Zithromax (which i'm sort of allergic to, but since that was when i was younger we'll see if i grew out of it. so far so good) 2 pills 3x a week. So I take 2 pills on Monday, Wednesday, and Friday. so that's 500 mg, 3x a week. and then they added hypertonic saline(inhaled). Then i was able to get my PICC line out. Yay. I'm going to miss that thing. :( But i'm free now. I've been busy lately because on Monday my baby boy, my mini Yorkie, Beauregard(Bo) turned 2 years old!!!! that dog is the love of my life. he's my "main man" :) and my grandma had her 2nd new knee put in, so i've been taking care of my grandpa, making him meals, visiting with him etc..because he's 88 years old. It's nice spending days with him, like today I spend quite a bit of time with him, and he took me out for ice-cream after i picked him up from the hospital where he was visiting my grandma, and the stories grandpa tells are so great. We figured out that he got his diploma 75 years ago! Wow! he was only 13 when he got his diploma. I take advantage of the time I have left with him and my grandma, and whenever there's an opportunity to spend time with them I do. So, will write soon, oh, and in 16 days I get to see Rascal Flatts in concert at Country USA, an event held here in WI. I got free tickets for all 5 days, but I am for sure going to see Rascal Flatts. Woohoo. Have a great day. Love you all. ~God Bless

Wednesday, June 1, 2011

Did I mention I made the Paper?

Yup that's right, I made the Local paper. Ha! and I really didn't know about it. I mean, I sort of knew about it. The Local paper and Make~A~Wish had called about a month ago and asked if they could do article about it. We said sure. We thought they were going to call us about it, but they just went straight to Make~A~Wish for the info. We didn't know I made the paper, because we don't get the paper, my grandma told my dad and a friend told my mom. So now we have 2 copies of the article. Make~A~Wish is just so awesome!!! I love you all. ~God Bless