The Joys of having CF

The Joys of having CF

Sunday, May 4, 2014

In honor of CF Awareness Month

In honor of CF awareness month I thought I'd share a few photos of things us CFers sometimes go through. 






Call me crazy but somehow I enjoy getting IV's, and i enjoy having PICC lines. Thankfully I've been IV free for 21 months. I can't believe it. It's been so long since I've been this healthy. I'm so thankful. 
Also here's the link to the video I made of me getting a PICC line http://youtu.be/xOXUVqvmzYQ 
Will write soon. Tomorrow I have a doctor appt. 

~God Bless 




CF Walk-A-Thon

On Saturday, May 5th, we had are local CF Walk. Our local walk, which is fairly small, raised just over $11,000 not counting online donations. There were lots of new faces this year. Lots of little kids. There was around 100 people. It was a great turn out and it was sunny instead of the predicted rain for the day. 
It was a wonderful day of people coming together to help find a CURE for CF :) 


"Helping to add tomorrow's everyday and to make CF stand for Cure Found".

~God Bless

Visit with Grandpa

So, some of you may or may not know but my wonderful grandpa has been in the nursing home now since last summer. He had a minor stroke, and then through a chain of events was put in the nursing home. He is at our local nursing home in town, and there's some of his friends he grew up with there, but it's not the same as when he was home. See my grandparents live just a few hundred yards away. I can see there house from our house window, it's walking distance. 
I would usually see my grandpa multiple times a week, but now with him being in the nursing home which is only 10 minutes away it's harder to see him. Time gets away and before I know it, it's been weeks since I've seen him, and I don't like that at all. He's 90 years old and will be 91 in a few weeks. I am very close with my grandpa, and he is also very close with my dog, Bo. 
So today I went to see him. The sun was shining, it was just the perfect day. He was so happy to see us, as was i to see him. I love him so much, and I don't know what I'd do without him. 


My grandpa and I.

~God Bless