The Joys of having CF: May 19, 2015

Tuesday, May 19, 2015

The long wait

After being told I should start Cayston back in November or December I finally received it. It only took 6 months for insurance approval, and many calls to the pharmacy etc...but those with CF will understand the urgency to get it. Tonight I took my first dose and my prayers are for increased lung infection and less chest congestion. So when I'm done with 28 days of Cayston I hope for at least some improvement, but I am very thankful to have been able to receive it.

Wish me luck!!

~God Bless

A Powerful Statement

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer