The Joys of having CF: 12/01/2018

Monday, December 3, 2018

New Adventure

This post is coming about week after I started. “New Adventure” and I wanted to share it with all of you. It kind of piggybacks/goes along with my blog.
Biggest question: is the blog going away? Absolutely NOT! I enjoy having this blog/writing way to much.
So here is the information on my new venture: from blogger to now VLOGGER!
I’m so excited to share this. It is a longtime coming.
Here is my initial “launch post” If you may call it that:

~the biggest risk; is not taking any~

I decided to finally do something I’ve talked about for years. I am excited to share this new fun adventure and hope my story can help even just one person. #cysticfibrosis #thankful #grateful #blessed

Here’s is the link to my first video: https://youtu.be/4S5M-cYW90U

I hope to post at least one video a week and I can’t wait to share my story with everyone on all platforms.

I hope you all enjoy.

~God Bless

A Powerful Statement

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer