For 4 months we’ve all been going through a run around with insurance to get it approved. With more hiccups than once can count Trikafta finally showed up February 18th. It was brought down and I started it on February 19th.
There were many happy tears!
With being in the hospital when I started Trikafta (and probably should have been a couple weeks ago-with a very fun exacerbation, and a large dip in PFT’s),
This heart of mine was so full and so thankful; there’s no words to even describe that feeling.
Day 8 in the hospital, which was also day 7 on Trikafta. I was beyond happy that after repeating my PFT’s(pulmonary function test) my lung function had gone from 52%(when I was admitted, and the lowest I’ve ever been) to 74%!!! From antibiotics and Trikafta I was beyond thankful for the progress.
Each day I wake up; I am so thankful & have so much gratitude knowing God’s on my side...which makes every day a day to be thankful for & is one more day I get to wake up, fight, & live this beautiful life.
I will complete a full 14 days of antibiotics, and come back for a follow up with my doctor at 4 weeks out of being on Trikafta.
We are all anxious to see the results I will have with this amazing medicine. The testimonials have been phenomenal.
But I don’t need to be greedy. I will be thankful for ANY improvement.
ANYTHING is something to be thankful for.
Like I was telling one of the traveling nurses this week when they asked how I like having CF. I am grateful. It makes me-ME. It makes me different. I don’t know any different. This is MY PERFECT life, and I will/would do whatever it takes to live this amazing life God blessed me with. It helps me appreciate life that much more; and like I told my nurse-if it was said that hopping on one foot could make a difference I would do it.
I will do ANYTHING! to fight and live this beautiful life.
ANYTHING!
Sometimes people take for granted how “good” life is.
Sometimes people let the “petty” stuff get to them.
Take a minute and just think-YOU woke up today.
That’s all that matters.
Life is beautiful. Don’t take it for granted. LIVE this beautiful life you’ve been blessed with, spend it with those you love, take on adventures and make SO MANY memories!! ...and if you happen to live with something, such as an incurable like Cystic Fibrosis-I hope you fight, everyday-because this life....
This life is so beautiful and we need to live it. Don’t take any day for granted.
~God Bless
