The Joys of having CF

The Joys of having CF

Thursday, December 19, 2013

6 Days

Only 6 days till my favorite holiday! Christmas 😊 
If I don't get on here before then, Merry Christmas. ~God Bless 
Love; me and Bo.

Tuesday, December 10, 2013

Seem's So Long Ago

It seems so long ago since I've blogged, but really it hasn't. A month maybe? I'm not an avid blogger. I blog when I think of it. Let's be honest; I think about it all the time, I have lists of blogs I read each day while on VEST, but I really only blog when I make myself take time to do it. I always say I'm a bad blogger, and I'm going to try to get better, both true statements, but in all reality the only way for me to get better at blogging is if I physically make time. Maybe I should make that part of my New Years resolution? Who knows. Anyways enough rambling. 
I hope everyone is doing good. I am doing great!! Staying healthy-despite the rediculiously cold weather we've been having where I live. Tomorrow morning its supposed to be -15* brrr! But in all honesty I do really like snow. Driving in fresh new snow is so fun(If it's not icy). I love looking out the window at fresh snow, when it's sunny outside and just watch it twinkle. It just makes me happy. Don't get me wrong. I dislike cold weather but there's just something about snow. It's also my favorite time of the year. Christmas time. I LOVE Christmas. I'm one of those who thinks about it all year long. I enjoy everything about it:  the meaning of it, being thankful, the music, giving presents, and just the joy of it. It's the time of year where people spend to much money on gifts, possibly get wrapped up in buying presents, but I love seeing how people enjoy giving to others. It makes me happy. I too also enjoy giving gifts to people this time of year and seeing everyone get happy, but I also have to remember the true meaning. 
Last time I blogged, or the time before, I mentioned my grandpa, and how he had a stroke. He's still at the nursing home but doing better.
I know I'm rambling but as things pop into my head I'm writing them down. 
My baby is doing good, he too is enjoying the snow, except he gets cold to quick. 
Could he get any cuter. Man I love him. 
Oh, so this year I went Black Friday shopping with my dad...on Friday, which is something surprisingly he enjoys as do I. We don't wait in lines for things and we go shopping for ourselves. It's the time of the year when we all get new clothes since their on sale. This year was no different, we got clothes that were on major sale, I got a pair of boots that were an awesome deal, and I finally got my new bed spread. It was finally discounted enough and my cheapness got the best of me(side note, I'm a total sale shopper). 
Isn't it sharp? So colorful, and reversible, I love it: 
Other than that, that's about it. Oh here's a picture of me and Bo the other day-not the greatest but that's okay: 

Sorry for my ramblings, I will try to write either before or after Christmas. If I don't write before I hope everyone has a great Christmas!! Have some Joy: 
Go watch a good Christmas movie, I suggest The Chistmas Shoes & The Christmas blessing. I cry everytime. Go listen to some great Christmas music, spend time with the ones you love. Be thankful for everything you've been blessed with this year and remember the true meaning of Christmas. 

~God Bless  

Friday, October 25, 2013

My baby's Anniversary

Today is the 4 year anniversary of when I got my baby. It seems like forever and I have no clue what I'd do without him. He is a great therapy dog, and my best furry friend. I love him so much!! I always say he's my baby! So for his "dog-aversary" I got him a fancy new tag with bling, some dog shampoo, and treats. he's not spoiled at all. Love my Mr. BoBo

~God Bless

Thursday, October 24, 2013

Don't forget to live!

Well today was the big day! My very first appointment with my new doctor in the adult side. To say I wasn't sad to not be at pediatrics anymore, would be lying. I miss my pediatric dr and clinic and staff, BUT rest assured after my appointment today I'm feeling much better. If you follow me on Facebook you probably know I had a great appointment. I started my visit with PFT's and blew.....99% never ever in my life have I blown that number so that was a great start to my day. Then I met with some of the staff like the nurse coordinater, social worker and dietician. Lastly my dr. He is a pretty cool guy. He is a pulmonologist and also a micro biologist(talk about a mouth full). One of the very first things he said to me that impressed me right away that I've never heard before and really put things into perspective was: "you've worked so hard for 18 years to be so healthy so you can live you're life, and I'm going to help you to live and enjoy that life". Basically meaning you've been told to do your meds and treatments so you live a long life, but you also have to remember to be able to enjoy and live that life! So all in all 
I really like my new dr. One last thing he said to me today that made my day was, "I'm not to worried about you health wise, I know you're going to be just fine and have a good future". That's very reassuring coming from a dr. 
And you know he really made me think today. We, CFers, are tought to grow up and do our meds, do our treatments, never miss one and work as hard as you can and do whatever you can to stay healthy so you can live a long life, but somewhere from the time we are told that to the present, we kind of forget to "Live" in a sence. We worry so much about staying healthy and sometimes "living" gets put aside. 
So I just want to end with a reminder: yes we have to do our treatments, yes we must do whatever we can to stay healthy, BUT we can't do all this work and forget to live. So please, go out and LIVE a long and Healthy life! It is possible to do both :) 

~God Bless

Monday, October 21, 2013

Great News

I just found out that the national CF convention was this past weekend and they had some amazing news. The average life span of someone with CF has raised! From 37 years old to now 41 years old. That's incredible! That shows just how much research is advancing, and gives new hope to all of us. What a great start to the week :)

~God Bless

Monday, October 14, 2013


Hey everyone just thought i'd do a quick update. Things are going good. My body and I are preparing for winter. I got my flu shot today(Monday). Next week Thursday I go to the Dr. It will be my first visit with my new doctor at the adult center. I'm kinda excited. I will also be getting a blood test for the study I'm apart of for the next year or so. So I will definetly give you all an update after my dr appt. 
My baby(Bo) is doing good. Next week will be the 4 year anniversary of when I got him. It doesn't seem that long ago. I love him so much. 

Other than that things are good. My grandpa had a tiny stroke a few weeks ago and is doing better. I posted a photo of him and I on Facebook yesterday:
"He's one of the most amazing men in my life. Don't know what I'd do without him. I love him so much."

Anyways I don't know much else. I hope all my fellow CFers are preparing for winter. Getting their flu shots, and doing their therapies so we can all avoid hospital stays this year :) I will update after my dr appt next week. Have a good rest of the week. 

~God Bless

Tuesday, September 24, 2013

Very bad blogger

So I apologize, I've been a bad blogger lately. I've been busy, but that's no excuse. My computer crashed, also not an excuse. So I've been doing everything from my phone-dont get me wrong i love my iPhone but writing blog posts is kind of tedious :) health wise I've been good. I go back to see my new adult doctor next month. I have to remember to also get my flu shot. Well I suppose I will write later and I know I say this all the time but I promise to try to get better at blogging!! Till next time, 

~God Bless

Monday, July 29, 2013

As Loyal As They Come

I haven't posted about my baby for a while. Everyday I wake up to him is a great day! I love this little man. He is such a loyal dog and every night when I do my treatments he is right by my side. I always say he is as loyal as they come. 

I hope everyone is doing well! I hope to write soon. 

~God Bless 

Thursday, July 18, 2013

New Chapter

Today I had my final doctor appointment with my pediatric pulmonologist. PFT's were good. I've never shared my PFT print out before but here's what it looks like: 

Basically the graphs measure my lung function and how much air I can blow out. My lung function stayed the same as last time, it was 96% which is truly awesome. 
It was kind of sad saying goodbye to all my old friends but time to make new ones. 
I got to go over to the adult CF Clinic and met some of the staff, and one doctor. I made another appt with him. he was very nice. 
All in all good appointment; although doctors get pretty excited when you lose weight until they find out they have you carb counting for your CFRD(Cystic Fibrosis Related Diabetes). Also, i am very excited to be participating in a research project for the next 2 years. I'm pretty excited. 
That's all for now. Will try to update soon! 

~God Bless 

Wednesday, July 10, 2013

Growing up

Its all a little surreal after 18 years; 2 clinics, 2 hospitals, & 4 doctors later the time has finally come. In 8 short days it will be my last time ever going to see my pediatric pulmonologist. I guess it means I'm officially an "adult". I now have to choose a new doctor. It will be a sad day, but I guess it's all part of growing up :) 

~God Bless 

Tuesday, June 4, 2013

10 Months

I was thinking about different health stuff today and realized; I haven't been on IV medicines or in the hospital in about 10 months!!! That's crazy. I don't remember the last time I went that long without being in the hospital. Usually i go in 2 times a year. Usually every 6 months. I'm so proud of myself for trying to stay healthy and to still have the lung function I have. I feel very blessed, and I'm going to do my best and whatever I can to continue to keep myself healthy. 
I hope everyone is doing well. I can't believe it is June already. Where did the time go?! 

Here's my baby, he finally got his summer haircut! 

Also I was thinking: is there any topics any of you would like me to cover in any blogs? Or have any questions? If you do leave them in the comments or email me etc...I'd love to answer them and do something a little different on the blog :) 

Have a great day! 
~God Bless

Monday, May 20, 2013

My Grandpa

I want to dedicate this blog post to my amazing grandpa. 
My grandpa turns 90 tomorrow (05/21). He is one of the most selfless people I know. He was a farmer his whole life. He has seen multiple wars, lived/survived the Great Depression, he married my grandma and together they have 5 children, & one of them is my dad. They also have 12 grand kids. 
My grandpa has worked hard all his life, like the lyrics in a song go "Well I grew up in one of them old farm towns, Where they hit it hard till the sun goes down, nobody really seemed to care that, we were living in the middle of know where, just figured that's how it was, and everyone else was just like us, soaking in the rain, baking in the sun, don't quit till the job get done". 
My grandpa is someone I look up to. He and I always have special talks and he always tells me about when he was growing up and about his life. Sometimes he repeats the same stories but I always enjoy hearing them again. He also loves my dog Bo. My grandpa is one of those people that when you meet him you can't help but love him. He always comments how he's outlived all his friends. 
This past weekend the family had a cookout celebrating his birthday and I don't think I saw a smile leave his face all weekend. You could tell he was so happy. So in honor of my amazing grandpa who I look up to so much, I'm going to share some pictures from this past weekend.

Happy Birthday Grandpa!!! Love you tons!! 

~God Bless

Monday, May 13, 2013

Little Bit of Everything

Hello! It's been a little while since I've blogged, so this blog will be a bit of everything. Last time I blogged I had just had a doctor appointment. So far I'm staying healthy :) weather in Wisconsin is starting to get warmer. I went for my first run/jog today and it felt great. I actually dislike running a lot but I decided to stop my gym membership for the summer and start running again. I dislike it but I know it's the right thing to do to keep my health good and to keep my body in shape.
I notice I haven't posted pictures for a while. I will have to do that soon.
My dog is doing wonderful. He's my baby :) things have been pretty crazy but fun the last few weeks. I am making a goal with myself to become a better blogger. I promise I will start trying to blog more. I can't believe the year is almost half over. I'm excited to see what the other half brings.
Well i am finishing my nightly meds. I will try to blog soon. Thank you all for following!
~God Bless

Thursday, April 25, 2013

Quick Update

Just a really quick update. I had a doctor appt today, PFT's were 96% I've never blown that number in my whole life. Every time I have great PFT's I end up in the hospital. Praying and fingers crossed that doesn't happen :) well I will write soon...just wanted to give an update. We have our local Walk-A-Thon on Saturday. Think lots of donations...closer to a cure!
~God Bless

Wednesday, April 3, 2013


Wow! I am truly amazed. I just looked at the 'stats' on how many people viewed my last blog post and it blew me away. Almost 200 views. I'm speechless! Thank you to all my wonderful followers. It means the world to me. I've been really busy the last week or so and pretty much this whole month so I will do my best to update before my doctors appointment on the 26thbI believe. Knock on wood-this has been the best winter I've ever had in my life. Pray for a good appointment and will post an update then or sooner if I get a chance. Thank you all so much!!
~God Bless

Monday, March 18, 2013

Where Has The Time Gone?

Hello, okay first to start off, i've been a very bad blogger lately. I haven't blogged in over a month, and before that it was even longer than that.
Anyways, let me update you all on how things have been going lately. I forgot to update you all on my doctors appointment that I had in January. My PFT's were 95% which is great. Weight was about the same. But I got some bad news...i'm officially, yup Diabetic. We all knew it was coming we just didn't know when. But so far I should be able to control it with diet :) which is great. So now I am trying my hardest to eat 6 meals a day. 3 meals and 3 snacks, and I have to Carb count. I have to try to stay within 60-75 carbs for meals, and 30-45 carbs for snacks. Let me tell you that is no trip. Wow! Somedays if i'm in town running errands, i'll run into Starbucks(for those of you who don't know me, I love starbucks, and have a Gold card-anyways) and just get a small iced, or hot coffee, with a little bit of nonfat milk, and some caramel. Great snack under 45 carbs :) So for the most part I think things are going pretty good.
My gym membership is officially over! and of course, I forgot to renew my membership. It's $35 a month. Not the worst, but I think i'm going to keep it un-renewed until the winter months and try to do some exercises here at home--we'll see. If I can't stay focused it's back to the gym i go. But whenever this crazy snow decides to leave, it's back to running. We have a 1/4 mile uphill driveway so that's a good run, and my grandparents and uncle are just up the road so I can always run there, and my dog will love it also.
So I think that's all that's going on for now. I'm sure i'm missing some stuff, but I promise that i am going to try my hardest to blog more often. Oh, one more thing, it's Walk-A-Thon time. So if anyone is interested in donating to help find a cure and to help me hit my fundraising goal, here is my personal website: and also if you personally know me and would like to join my walk and come hang out with us, message me and let me know. Well I am finishing my VEST and it's off to bed! I will talk soon everyone!
~God Bless

Thursday, February 14, 2013

I'm Baaack!

I'm back. I haven't posted in quite sometime and I decided to get back in the 'blogging mode'. For everyone wondering I am doing great. I will post a health update in the next few days. Life in general has also been great!
I hope to start getting back in the groove of blogging soon. Until next time I hope everyone is doing well!
Hope you have a wonderful day and a happy Valentines day!
~God Bless