The Joys of having CF

The Joys of having CF

Sunday, October 30, 2011

It's been a while

So, I want to apologize again for not doing a blog post since October 1st. So for 29 days. Well I'm just going to give a quick little update on what I've been up to in the past 29 days, and I WILL try to become better at blogging more often. So In the last 29 days I've:
*Got the Flu Shot :)
*Started my 28 days of Tobi
*Went to Ohio
*Spent time with family in Illinois
*Took my baby to get a haircut(my Yorkie, Bo)
*Been enjoying life
*Enjoyed the last few days of nice weather
*Put money down on a new vehicle :)
& most importantly...
If anyone knows me, normally in October I get sick and sometimes go into the hospital. Well i'm still really healthy, and I'm going to try to shoot for a hospital free year!! If I can make it 7 more months, it will make 1 year since i've been in the hospital...fingers crossed.
I can't get sick this winter, there's to much exciting things going on. In December Me, My mom, My dad, and my baby are packing up the vehicle and heading to Florida for about a week or so. We're going to see our friends there, and possibly go on their yacht, and visit my grandma and grandpa down their also.
Also, in February sometime, we're going to Arizona for a couple days. I can't afford to get sick, and in 13 days it's my birthday. WOOHOO!! I'm so excited, but I'm most excited that I'm so healthy for being almost 17. Some people aren't as lucky. I'm so thankful for how healthy I am, and I thank God everyday for everything he's blessed me with.
Lastly, if you guys could, could you keep my friend Jordan in your prayers, she's 17 and has CF, we've become very good friends, she's in the hospital right now, you can visit her at her website:
Love you all...will write soon. ~God Bless

Sunday, October 2, 2011

Awaiting Winter

I know, I can't believe I said that either. But, the reason I said that is because this winter is going to be awesome!!! In December we get to go visit our our great friends George & Jill in Arizona, and sometime over the winter we also get to go to Florida. See my parents just hit some goals, and new levels in their business and that qualifies them/us to get to go to Arizona and Florida. The Arizona trip is for all 3 of us, and the Florida trip is mostly for them, BUT since my grandma and grandpa(my mom's parents) live their, I get to go with, and while my mom and dad are by our other friends(probably shark fishing--lucky ducks) I get to hang out with my grandma and grandpa. I'm excited. I don't see them much, so this will be awesome!!! I'm so excited for 2012. It's going to be the BEST year our family's ever had!!!! And, i'm hoping to make it my healthiest year yet! Have a good day!!!

~God Bless

Saturday, October 1, 2011

Cost of a Lung Transplant

Have you every really thought of how much a double lung transplant had? One of my facebook friends had that as a post a few days ago, and the average is around $5-600,000. Give or take. It could be off a little. She said in 2007 a single lung transplant costed around $400,000. The average cost of a double lung transplant was $550,000. If you had a heart-lung transplant(getting a new heart and one lung) was around $875,000.
The total cost of a lung transplant includes several types of expenses, such as diagnostic tests, the costs of procuring and transporting donor organs, fees for the surgeon and the anesthesiologist, pre- and post-operative hospital care (including time spent in the intensive care unit, or ICU), and fees for prescription drugs. For example, the total cost of a single-lung transplant includes about $20,000 in evaluation fees, $41,000 to obtain and prepare a donor lung, $33,000 in physician's fees and $210,000 for the cost of the hospital stay. It also includes about $65,000 for follow-up care and $30,000 for immunosuppressive medications. All of these expenses may vary according to the particular medical provider, and the length of the hospital stay.
Resource:: online resource Transplant Living.

Just think about those numbers. It's INCREDIBLE!!! That is why we have fundraisers to raise money. The Cystic Fibrosis Foundation is not government funded, so it's up to us to raise money to find a cure! We MUST find a cure, SOON!!!!!!

On November 17th my parents are going to be climbing for a cure. I did last year, but i'm not going to due to the fact that there will be other CF people there, and I don't want to get sick, as I am currently at my healthiest, but I am still raising money for it.
So i'm asking, if you would please take the time to possibly make a donation to help us find a much need cure for CF. We can't lose anymore people to CF!! Here is a link you can go to to make donations.
Thanks so much!!! ~God Bless