The Joys of having CF

The Joys of having CF

Tuesday, August 30, 2011

Test Drive

Having CF, you really don't know what a "real" breathe is like. To someone with CF the breathes we take are "normal" to us. We don't know any different, and someone without CF doesn't know any different either. Well, the other night while I was doing a VEST treatment, I was thinking, wouldn't it be awesome to take a "test drive" and see what it feels like to take a "real" breathe. Wouldn't that be awesome? To trade places with someone who has no breathing problems and see what their lungs are like, and they can see what ours are like? I think it would give them a whole new outlook on life. I just kept thinking about that....What If? What if?? SOON there will be a cure....SOON!!

Thursday, August 25, 2011

So Very Thankful

So as I sit here tonight, in my room browsing around on the computer, listening to music, while parents have a meeting, I was thinking how extremely wonderful this year and next year are/going to be. As I sit here awaiting the hopes of a phone call i've been waiting for, as I await the launch of the new iphone 5(hopefully white) and as I sit here I think, wow in just 2 1/2 months I'M GOING TO BE 17!!!!! Wow. I am so very thankful that i'm around. I live an amazing life, I love my life. I'm so thankful at how healthy I am, and how extremely great my PFT's are. I think about all those that lost their battles with CF far to young, I think about how grateful i am that i don't need a feeding tube or oxygen, or insulin. I think about how grateful i was of my Make~A~Wish trip. Tonight I am just Oh so very thankful!!

~God Bless

Wednesday, August 17, 2011


Here's the link to view the pictures!

Long Overdue Update

Wow, I am really slacking. I haven't posted very much at all this summer. I'm just going to give you all an update on how things are going. Things are going great! I'm feeling great, my summers going great. I am anxiously awaiting getting my new phone--SOON!!!! i hope :) We are in the process of possibly going to Arizona to see our great friends before the end of the year! So pumped, even if it's only for a couple days :) I go back to the doctor on September 15th for annual testing. That includes a glucose tolerance test(i absolutely love them!) i know i'm weird. Then I have an X-ray, then PFT's, then Doctor :) So basically that's how i've been doing,and what's going on in my world. I FINALLY after 5 months of being back from Bora Bora, i finally uploaded some pictures onto my facebook account. Here's a link to view them

Lastly I just wanted to let you all know, one of my great friends Jordan just came back from her Make~A~Wish trip. She went to the beautiful island of Hawaii!

And on a sad note, last week Tuesday another CFer lost her battle with CF. She was 21 years old. Breathe Easy Ashley!

Will try to blog more frequent! Hope all of you are doing well. God Bless