The Joys of having CF

The Joys of having CF

Tuesday, January 31, 2012

Day 16

Day 16 is a passion I have. I have many passions in life, but my main ones are:
-helping & making a difference in peoples lives.
-living a life of excellence.
-living each day as if it were my last.
Those are the passions I have in life. I believe that God put me on this earth for a reason and i'm not going to let him down, I am going to help as many people as I can and make a difference in as many peoples lives, and I am going to live a life of excellence and live each day as if it were my last.
Those are my passions in life :) God Bless.

Monday, January 30, 2012

Day 15

Day 15-something i don't leave the house without. That's very easy. My Enzymes, purse, and phone. Simple as that :) I always have enzymes in my purse-oops guess i should have mentioned that in "whats in your make up bag/purse", oh well you'll see it now :) Those are basically the only things i don't leave the house without. I like leaving with money to, but that doesn't always work out haha.

Have a super day. ~God Bless

Sunday, January 29, 2012

Day 14

Day 14-TV show(s) your currently addicted to. Well we don't have TV. When it went digital a few years ago we decided not to upgrade. People think its a bad thing to not have tv, well we LOVE it. We read more books, watch movies, and use the computer. Other than that it hasn't killed us not having tv, so why get it back now :) But, I do like a few older shows that i watch at my grandmas but plan to purchase sometime:
1) The Cosby Show-my all time favorite
2) Reba-love it
3) Home Improvement-hilarious
4) The Nanny-need I say more
Those are basically the only shows i really care to watch.


Well have a great day. Love you all ~God Bless

Saturday, January 28, 2012

Day 13

Day 13-a few of your favorite quotes, mottos, or versus. Wow okay so I have wayyy to many to post, but if you look on my blog i have a quote right under the picture and a saying right under my "about me". If you're friends with me on facebook you know i like to post lots of quotes. It's my favorite thing to do. Lately I like, "i ain't as good as i'm gonna get, but i'm better than i used to be", "never let your praying knees get lazy, and love like crazy", "i ain't here for a long time, but i'm here for a good time", "life's not the breathes you take, but the moments that take your breathe away", "never let the fear of striking out, keep you from playing the game", "live each day as if it were your last because tomorrows never promised", "when one door opens to another door closed, i hope you keep on walkin' till you find the window", "two roads diverged into a yellow wood, and I, i took the road less traveled and that made all the difference", "YOU LIVE FOR THE FIGHT WHEN THATS' ALL THAT YOU'VE GOT".

Those are just SOME of the MANY MANY quotes i love.i hope you enjoy. have a great day. ~God Bless

Friday, January 27, 2012

Day 12

Day 12-your current relationship status? I am single. Don't judge :) i'm only 17! :)

That was easy haha.

Have a super day. Love you all. ~God Bless

Thursday, January 26, 2012

Day 11

Day 11 is what's in your purse/make up bag. Well i don't have a make up bag since i'm not to fond of make up, but i do have a purse, and all that's in it is my wallet, car keys, and my phone(occasionally). That's it. Kinda simple. But I do love purses :)

Talk soon. Love you all. ~God Bless

Wednesday, January 25, 2012

Day 10

So day 1o of the blogging challenge is a photo of your favorite place to eat. Well I don't have a photo but i'll tell you my favorite place(s) to eat. I LOVE food, for anyone that knows me. I love me a good meal of meat and potatoes, pizza, but I especially love me a good meal of PASTA. Yes, I jokingly say I should be italian. I love pasta so much.
So my favorite place to eat is Olive Garden. Now it's hard to choose but it's the first one that comes to mind.

Have a good day. Love you all. ~God Bless

Tuesday, January 24, 2012

Day 9

So Day 9 of the blogger Challange is-A photo of the last item you purchased. Well Saturday I purchased these wonderful pair of-yes Shoes! haha. This is a picture of my red high heels. I love them, and got a super deal on them. I am a total sale shopper, so when I see a pair of $50 shoes on sale for $10 it's kinda hard to pass up. So here is a photo of the last item i purchased :)

I hope you all have a good day. God Bless. Love you!

Monday, January 23, 2012

Day 8

Blogging challenge Day 8-A song to match your mood. Well I have MANY favorite songs, but a few songs that match my mood and hit so close to my heart have to be:
1) Rascal Flatts-I won't let go
2) Kid Rock-Born Free
3) Jason Aldean-Tatoos on this town
4) Blake Shelton-God Gave me you
5) Bon Jovi-It's my life
6) Michael Jackson-Man in the Mirror

There are MANY MANY more-lots of Rascal Flatts songs but these are in my "top list" of songs that match my mood-most every day.

Have a good night! Love you all ~God Bless

Amazing Statement

This was posted by one of my facebook friends and I thought it was just so amazing. It almost brought me to tears because it's so true. Enjoy:

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted."

Sunday, January 22, 2012

CF appt. Update & Day 4-7

Okay so first i'll update you all on my doctor's appt. I had on Wednesday. BEST.APPOINTMENT.EVER! When I did PFT's I blew a 97%. I have NEVER blown a 97% in my whole life. I am the healthiest i've ever been in my whole life and I am so thankful and I thank God every single day for the health he's blessed me with. As one of my friends said to me "God was talking to my lungs that day". I agree 100%.

Okay so next, As many of you know i'm doing a little 30 day blogging challenge, well i missed days 4-7 bad I know but since day 4-6 sort of went together i'm really not that far behind ;)

A picture of me and My best friend, talk about my pets, and a animal i'd like to keep as a pet. So the answer is the same for all of them. My dog Beauregard(Bo).
Bo is my mini Yorkie. He will be 3 years old in June, and I will have him a total of 3 years in October. How time flies is insane. He is totally my best friend, and my baby. His real name is Beauregard(only said when he's in trouble) but we call him many things, Bo, BoBo, Little Man(his favorite), Bear Bear, & Prince Bo. Can you tell he's my baby? He's my "main man" as I tell everyone haha. He has dog clothes, a carseat for the car(yes he has a carseat-don't judge) hehe, he loves toys, and he is a dog of many different colors & hairstyles. He is truely is my best friend. So here are a couple pictures of me and my "main man".


This is a picture of Bo the 2nd day I got him.


Bo in the car :)
My baby & me-yes we're matching :)
So lastly Day 7 was what is your dream wedding, well i'm only 17 but my dream wedding is a beach wedding, a classy, ellegant, fun wedding.


So i'm going to try to update more this week. Love you all. ~God Bless.

Wednesday, January 18, 2012

30 Days of blogging: Day 3

So as many of you know I have been doing this the last few days and i've been doing pretty good at keeping up with doing all 3 days so far :) So before I get to what Day 3 is, I just wanted to give you all an update on my health. Tomorrow I go to my CF dr. I have been out of the hospital for a total of 8 months!!!!! Crazy! I'm hoping for a total year w/no Iv's...do you think i can make it? Anyways so i go tomorrow and will update everyone on how my appointment goes.

Okay so now onto the Day 3 of blogging. Day 3 is your idea of your perfect first date. So i've never been on a first date before, heck i've never been on a date before haha but hey i'm only 17 ;) but I think a perfect first date would just maybe be going to dinner or something like that. I don't know.

So that is Day 3. If you want to join, just look at my posts from Day 1 & 2 and it has the catagories and such. Have a good night. Love you all. ~God Bless

Tuesday, January 17, 2012

30 Days of blogging: Day 2

My fellow blogging friend Jenny from Life as a Livingston had this on her blog and I thought i'd take the opportunity to also do it.
Now, I have to be honest and tell you up front that I'm not going to follow through with this EVERY day, but I'll definitely be more inclined to post something if I have an outline to follow. The less thinking involved on my part, the better!I'm posting the list here, in case any of you want to join. You can jump in at any point; the posts don't have to coincide with the day of the month or anything like that.
I am doing this to maybe help you get to know me a little more :)

Day 1 - Your Favorite Song
Day 2 - Your Favorite Movie
Day 3 - Your idea of the perfect first date
Day 4 - Your favorite photogaph of your best friend(s)
Day 5 - Talk about your pets
Day 6 - A photo of an animal you'd love to keep as a pet
Day 7 - Your dream wedding
Day 8 - A song to match your mood
Day 9 - A photo of the item you last purchased
Day 10 - A photo of your favorite place to eat
Day 11 - What's in your make-up bag/purse
Day 12 - Your current relationship status
Day 13 - A few of your favorite quotes, mottos, or versus
Day 14 - TV show (or shows) you're currently addicted to
Day 15 - Something you don't leave the house without
Day 16 - Describe a passion you have
Day 17 - How you hope your future will be like
Day 18 - Five things that irritate you
Day 19 - Your reflection in the mirror
Day 20 - The meaning behind your blog name
Day 21 - A photo of something that makes you happy
Day 22 - A letter to someone who has hurt or OR made you happy recently
Day 23 - 15 Facts about you
Day 24 - A photo of something that means a lot to you
Day 25 - 5 of your favorite movies/books
Day 26 - A photo of somewhere you want to go
Day 27 - What kind of person attracts you?
Day 28 - In this past month, what have you learned?
Day 29 - Something you could never get tired of doing
Day 30 - A photo of yourself plus 3 good things that have happened within the last 30 days

So here we go: Day 2 my favorite movie. Well as most of you know I am obsessed with John Travolta. I love all of the movies he's in and everytime one of his movies is on i just have to watch it. I love many many movies, like "A Walk to Remember", Christmas Movies, Musicals, etc...but my ultimate favorite movie has to be "Ladder 49" with John Travolta. I not only like this movie because he's in it but it has such a true meaning in it, and it is such a motivating movie. I love it. I highly suggest you watch it sometime-but be sure to have kleenex.


Monday, January 16, 2012

30 Days of blogging: Day 1

My fellow blogging friend Jenny from Life as a Livingston had this on her blog and I thought i'd take the opportunity to also do it.


Now, I have to be honest and tell you up front that I'm not going to follow through with this EVERY day, but I'll definitely be more inclined to post something if I have an outline to follow. The less thinking involved on my part, the better!

I'm posting the list here, in case any of you want to join. You can jump in at any point; the posts don't have to coincide with the day of the month or anything like that.


Day 1 - Your Favorite Song
Day 2 - Your Favorite Movie
Day 3 - Your idea of the perfect first date
Day 4 - Your favorite photograph of your best friend(s)
Day 5 - Talk about your pets
Day 6 - A photo of an animal you'd love to keep as a pet
Day 7 - Your dream wedding
Day 8 - A song to match your mood
Day 9 - A photo of the item you last purchased
Day 10 - A photo of your favorite place to eat
Day 11 - What's in your make-up bag/purse
Day 12 - Your current relationship status
Day 13 - A few of your favorite quotes, mottos, or versus
Day 14 - TV show (or shows) you're currently addicted to
Day 15 - Something you don't leave the house without
Day 16 - Describe a passion you have
Day 17 - How you hope your future will be like
Day 18 - Five things that irritate you
Day 19 - Your reflection in the mirror
Day 20 - The meaning behind your blog name
Day 21 - A photo of something that makes you happy
Day 22 - A letter to someone who has hurt or OR made you happy recently
Day 23 - 15 Facts about you
Day 24 - A photo of something that means a lot to you
Day 25 - 5 of your favorite movies/books
Day 26 - A photo of somewhere you want to go
Day 27 - What kind of person attracts you?
Day 28 - In this past month, what have you learned?
Day 29 - Something you could never get tired of doing
Day 30 - A photo of yourself plus 3 good things that have happened within the last 30 days




SO here we go--my favorite song:


I have way to many favorite songs. As many people know i'm absolutely obsessed with Rascal Flatts. best.music.ever! but my one song that i really love is Kid Rock's song Born Free. I heard it at a funeral for our friends son who died and it really hit home. He was in his early 20's and this song really hit home, especially having to me with having CF. So here is the song I hope you enjoy :)


http://www.youtube.com/watch?v=bu3rsha1ZtI&ob=av2e



Born Free lyrics:


Fast, on a rough road riding

High, through the mountains climbing

twisting, turning further from my home.

Young, like a new moon rising

Fierce, through the rain and lightning

Wandering out into this great unknown.

And I don't want no one to cry.

But, tell 'em if I don't survive



I was born free!

I was born free

I was born free, born free.



Free, like a river raging

Strong as the wind I’m facing.

Chasing dreams and racing father time.

Deep like the grandest canyon,

Wild like an untamed stallion.

If you can’t see my heart you must be blind.


You can knock me down and watch me bleed

But you can’t keep no chains on me.



I was born free!

I was born free

I was born free, born free.



And I'm not good at long goodbyes

But look down deep into my eyes

I was born free.



Calm, facing danger

Lost, like an unknown stranger

Grateful for my time with no regrets



Close to my destination

Tired, frail and aching

Waiting patiently for the sun to set



And when it's done, believe that I

will yell it from that mountain high



I was born free

I was born free

I was born free, born free



I will bow to the shining sea

And celebrate God's grace on thee




Thursday, January 5, 2012

Happy New Years

Happy New Years. I know it's a little late, but I just wanted to wish everybody a happy new years. I hope this year brings much happiness, love, and peace to everyone. I hope everyone has a good and HEALTHY year. I hope that not so many people lose their battle from CF this year. Last year we lost so many precious lives from CF, it is just so sad. They lost their battle way to soon. I pray this year we come closer than EVER to finding a cure, as some of you may or may not know, one of the new CF drugs that shows very positive results in correcting a certain CF gene is now waiting to be approved by the FDA. The CF foundation was able to get "priority approval" which means instead of waiting possibly a year or more to get it approved, it is going to hopefully be approved in April. How exciting. We all have our goals set for our CF walk-a-thons coming up this year. If you are interested in joining our walk let me know, send me an email/fb message, or if you are interested in donating to my walk here is the personal link to my donation site. http://www.cff.org/Great_Strides/PaigeSchreiber6672 If you don't like doing things online, and would like to make a donation, let me know email/fb message and we'll figure it out :) If you are able to I'd really appreciate your help. ANY donations are so helpful. We need to get that cure out! and help make even more tomorrows happen for so many more CFers that are waiting for a cure just like me, then maybe not so many people will have to have Lung Transplants. So please pray, and donate, and have a very wonderful-healthy 2012. Love you all! ~God Bless