The Joys of having CF

The Joys of having CF

Tuesday, April 29, 2014

4 days

I just wanted to do a quick post about what's happening in 4 days. In 4 days it's CF Walk-A-Thon time! I get excited every year when it gets closer to May, because May is CF Awarness month. 
This year I really dropped the ball on fundraising for my walk. I'm still getting personal donations from friends and family but I forgot to utilize my fundraising site. BUT, this Saturday rain or shine, my family and some friends will be doing the walk. I live in a smaller town so it is a pretty small walk but we raise as much as we can to help find a cure. 
Also, in honor of May being CF Awarness month, a couple years ago I was asked to be a "model" for my children's hospital and they took photos from me getting my PICC line, so they could show some photos to help those who were nervous and so they could show them what's going to happen and for teaching. Well I then created a YouTube video with the photos to help raise Awarness and I noticed the other day somehow it was private, so i changed the settings to public so hopefully everyone can see it now. Here is the link to the video:
I really hope it helps raise some Awarness for others. So turn up your speakers and enjoy. 
Lastly, I have had some people ask for my fundraising link, feel free to message me, or find it on my Facebook page. 
I hope everyone's doing well and staying healthy. 
Also, I go to the doctor on Monday for CF clinic! Fingers crossed for great PFT's. 

~God Bless 

Thursday, April 17, 2014

Happy Spring

I hope everyone's enjoying Spring, or if your like those of us that keep getting snow, waiting for Spring :) 
I've been a little MIA, we recently went on a Caribbean cruise, so I was gone for 8 days, and we visited with my grandma in FL for 2 days as well. 
The trip was great. This was our first cruise. It was a little long, but id definitely do it again. We went on Royal Caribbean's ship the Allure of the Seas(the biggest ship currently in the water). Lots of fun. We started off from Ft.Lauderdale and then went to the Bahamas, St. Thomas, and St. Maarten. 
St. Thomas was my favorite spot. 
I thought id share a few pictures quick,

Our boat

St. Thomas-my favorite

St. Maarten

I'll try to post more pictures or a link to the pictures I put on Facebook. All in all it was a great trip and lots of fun. 

I did miss my dog but he was in good hands, & my health stayed great through the trip. I brought all my meds and VEST with me on the boat. 

Hope everyone had a great day. 
~God Bless