The Joys of having CF

The Joys of having CF

Sunday, April 26, 2015

Walk-A-Thon Time

It is almost May?! Can you believe it. If you've followed this blog at all as I've said before May is my favorite month because it is Cystic Fibrosis Awareness month. This coming Saturday(May 2nd) is our local CF Walk A Thon. I am very excited to go and see everyone again. This CF walk will be a little bittersweet because one of my great CF friends will not be there since he passed away last year. He was someone I looked up to because he was one of the first people my family and I met who had CF. 
Anyways I wanted to share the link to my personal fundraising site. I didn't do much for online fundraising this year, but did personal donations. I get asked each year for my fundraising link, so if someone is interested in donating here is the link: Personal Fundraising Site
I'm still getting personal donations from friends and family but I always forget to utilize my fundraising site. BUT, this Saturday rain or shine, my family and some friends will be doing the walk. We live in a smaller town so it is a pretty small walk but we raise as much as we can to help find a cure. 
Also, in honor of May being CF Awareness month, a couple years ago I was asked to be a "model" for my children's hospital and they took photos from me getting my PICC line, so they could show some photos to help those who were nervous and so they could show them what's going to happen and for teaching. Well I then created a YouTube video with the photos to help raise Awareness and I noticed the other day that somehow it was private again, so I changed the settings to public so hopefully everyone can see it now. Here is the link to the video: PICC Video  So turn up your speakers and enjoy. 
I will write soon, and I will end with one of my favorite quotes in honor of CF Awareness: "life's not the breaths you take, but the moments that take your breath away."
~God Bless

Thursday, April 16, 2015

It's been a While

Hey everyone, 
It's been quite a bit since I've blogged, and I had some time tonight so I decided to do a quick update. First, I hope everyone had a great Easter.
Isn't he cute?!
 I got to spend my Easter with family & especially my amazing grandpa. If you've followed my blog, Facebook, Instagram know I have a huge place for my grandpa. He's one of my most favorite people, someone I truly look up to. 
Don't worry, I'm sure I'll post more about him soon. 

As far as my health, other than my nonstop stuffed up nose things are going good :) I go back to the doctor May 12. I will be having a CT scan of my lungs to see if we can't figure out why there's one spot that won't go away, and to figure out what it is. 

Lastly, its almost my favorite month of the year...May. Cystic Fibrosis Awarness month. It's the time when Facebook turns purple, and we all snow our support for CF Awarness. It's also the time we remember those who lost their fight with CF, and we raise money and Awarness so less people lose their battle and can live long happy Healthy lives. On May 2nd we have our local CF Walk~A~Thon, as does many locations the rest of the summer. 

hope everyone is doing well, and I will update after our local CF walk if not sooner, and with that I'll end with one of my favorite quotes:
"don't let anyone dull your sparkle". 

~God Bless