The Joys of having CF

The Joys of having CF

Thursday, September 27, 2012


Hello, Just wanted to write a quick update.  I am officially PICC free :) Last week Tuesday I got my IV taken out when I went to the doctor for my follow up visit.  My PFT's were back to my normal which is 95%.  Which is very good. I was proud of myself.
When I went to the doctor last Tuesday it was the first time in my 17 3/4 years (yes technical) of being alive that my dad took me to the doctor. (For those of you who don't know my dad, he is not one bit fond of IV, needles, blood, hospitals etc..) but I must say he did GREAT! He didn't get woozy or light headed :) I am very impressed. Then after the first stop we made---STARBUCKS! I love me a good salted caramel mocha this time of year :)  Then we went out for lunch/supper at Noodles and Company.  I kinda like dad/me days! Anyways there's not much that i know. Oh, on October 24th I have my CF annual studies which include glucose test, dexa scan, and Xray. Not to bad. Then I go back for my doctor appt. on November 1st.  We're trying to get all these appointments in before I turn 18-which is November 12th. So here are just a couple recent pictures. Enjoy!

                                                        During a dressing change.
                                                         PICC Free!
                                                        My main squeeze!

Off I go this early morning to go dog sit for a wonderful friend-who is someone I call my "adopted grandparents" I just love her and her husband. They're the best! And their dogs are so cute and I just love them all ;)

Have a great day! ~God Bless

Tuesday, September 11, 2012

1 week Update

Hello, so i have now been home officially one week from the hospital.  As I write this i am finishing up an IV medicine and then I'm off to bed.  Things have been going good. I have been able to go back to the gym-with light weight restrictions because of my arm.  This past weekend our good friends "adopted grandma" as we call her, they were up from out of town so my mom, dad, my cousin (Mariah)-*sidenote we are only a month apart in age-we're like sisters*, and I all headed up for the day to see them. It was a great time. We always enjoy seeing them. Love them immensely! They hadn't seen my cousin for a while so it was good a good surprise that we brought her with.
I go back to the doctor next week Tuesday for a follow up and to maybe get my IV pulled. Its the first time it's just my dad and i going. eek! it should all be good though :) Also in other news---on Saturday (Sept. 8) my dad turned 49! Can you believe it :) He didn't seem to appreciate it when i told him he was half way to 98 hehe. So anyways that's all for now-Here are some pictures of recent things, enjoy!
~God Bless

                                           My PICC Line.
                                                My view I had from my hospital room.
                                             Me & my cousin, Mariah.
                                                     Mariah & I.
                                                      Bo out in the town :)
                                                                   My Baby!

Tuesday, September 4, 2012

Clinic Update, Hospital, & 200th Post

A lot has happened since I last wrote. At the time of my last post I was going to the doctor for a checkup.  I had my PFT's and they were great, best ones I've ever had in my life. They were 98% which means I'm the healthiest I've ever been in my whole life.
Well after my appointment on the way home i started feeling very tired and wore out. I got a headache and everything. So mom drove home and i slept almost the whole way.  Well from there I got home and took a nap and by Friday I was sick. Not feeling good, headache it was horrible. On Saturday my headache was somewhat better but I started having this bad...cough.
Yep, lungs-great. See, whenever I have a great PFT, i somehow always end up sick after. I think the test triggers something in my lungs. Well by Sunday mom had called the on call doctor and he said go on Tobi. So i did and by Wednesday I just was not feeling any better. So mom called on Thursday and they wanted to admit me to the hospital on Friday.
So Thursday I packed and on Friday mom and I headed to the hospital. I got my PICC line-with no sedation-which was a shock, and thankfully i had a doctor put it in, and it was the easiest PICC ever even with all the scar tissue. The doctor was awesome and it was in in 15 min. Then I got back to my room and we started my antibiotics. Levaquin (the usual) and Meropenum (spelling?).  So I was there until today (Tuesday) I was supposed to go home yesterday (Monday) but w/the holiday things got miscummunicated. So we came home on home IV's for about 2-3 weeks, and I'll be good as new. I feel better already and I'm going to the gym Thursday :) So excited to go back.
Wow; what a long update. I'll try to update more often and post pictures soon. I have to go do my VEST and 5 Neb's (Albuteral, another Neb (forget the name), hypertonic saline, Pulmozime, and Colimisin (spelling). Hope you all have a good night and it's a special post because it's my 200TH blog post!!!!! Thank you to all who read my blog. It means a lot!!!
~God Bless