4 years ago today me, my mom, my dad, and my sister started out on one of the greatest adventures ever. My Make~A~Wish trip. We were going to Bora Bora. We were all super excited, especially since we weren't entirely sure how big the island was. Come to find out it was only 5 miles big :) if you want to see the original post I'll link it right here:Make~A~Wish Trip.
Let's just say it is a memory we will all have forever and I will always be forever thankful for the Make~A~Wish foundation. There are definitely children much sicker than I am who should be doing their wishes, and I'm just thankful that I was allowed to have one of my greatest Wishes come true. It is truly a memory I will remember forever, and for that I am thankful. It really goes to show that "Dreams DO come true".
Today March 7, 2015 marks my 20 year anniversary of being diagnosed with CF. I was four months old, and when I was diagnosed the life expectancy was not very good. In fact my parents were told I may not live to graduate high school.
Having those kind of odds against you isn't very good, but I am very thankful that my parents did everything they could to make sure I got the best care. They took me to one of the top medical centers in Wisconsin to give me the best chance, and for that I am forever thankful.
The past 20 years have been amazing, I went to school, proved statistics wrong & graduated high school, went on some pretty amazing trips, stayed relatively healthy, obtain a job, and the best part; the life expectancy keeps increasing.
But I've never really been one to worry to much about statistics. Now don't get me wrong there's been many tough times, but in the end, those times just make us stronger.
To me the only thing that matters is living your life to the fullest each day, because tomorrow's never promised for anyone.
I am so thankful the last 20 years, and yes I was born with CF but I always celebrate my CF anniversary because that is the actual day all of our lives changed forever.
I was also diagnosed on my uncles birthday; the same uncle who I was born on him and his wife's anniversary, so it's kind of a special day.
Today's also a bittersweet day because it makes me think of all those who didn't get to celebrate days like these.
So please keep them in your prayers today. I am so excited to see what the next 20 years hold, I can't wait for the next journey.
I'm going to end with one of my favorite quotes:
I hope everyone has a wonderful day, and remember to live your life to the fullest with the ones you love because tomorrow's never promised and remember: "don't let anyone dull your sparkle".
My name is Paige. I have Cystic Fibrosis. I am a fun loving, small town girl with big dreams...trying to live my life to the fullest. I am a Christian. My family is my priority. I was homeschooled since my freshman year of high school and graduated a year earlier at age 17-Senior 2012. I love anywhere with an ocean. My favorite color is Pink of course. I have a crazy love for food. I love to travel. I want to see the world. I enjoy spending time with my family & friends. In March 2011 I went on my Make~A~Wish trip to the most beautiful island in the world, Bora Bora. I have written a book called, Growing up with Cystic Fibrosis the first 13 years. It's about living with Cystic Fibrosis (an incurable illness). I wrote the book to help people. I have recently started to get involved with public speaking. I believe that my purpose in life is to help people, and to make a difference. I believe that God put me on this earth for a reason, and i'm not going to let him down.
Social Media sights: Instagram,Twitter, Snapchat & Poshmark: paigecf94
"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer