The Joys of having CF

The Joys of having CF

Sunday, October 31, 2010

Enough Said

My 2 favorite quotes right now:

"champions;are made in the one more fight"

"if you take the easy out of life, you life will be hard. but if you take the hard way in life, your life will get easier"

Friday, October 29, 2010

I love this story(even if it may be fake)

I came across this story multiple times. whether it be on facebook, emails, but mostly forwarded text messages. I recieved it again today, and decided I'm going to post this. Now, I know that this story may be totally fake, but I don't care, I just love the meaning of it, even if it isn't a true story. If it was it would be a great story. Most of you have probably read this already, but hope you enjoy =)

"A girl and guy were speeding over 100 mph on the road on a motorcycle.
Girl: Slow down. I'm scared.
Guy: No this is fun.
Girl: No it's not. Please, it's too scary!
Guy: Then tell me you love me.
Girl: Fine, I love you. Slow down!
Guy: Now give me a BIG hug.
---girl hugs him---
Guy: Can you take my helmet off and put it on yourself? It's bugging me.

(in the paper the next day): A motorcycle has crashed into a building because of brake failure. Two people were on it, but only one survived.

The truth was that halfway down the road, the guy realized that his brakes broke, but he didn't want to let the girl know. Instead, he had her say she loved him and felt her hug one last time, then had her wear his helmet so that she would live even though it meant that he would die."

I know it may be fake, but i thought it was just a cute story :)
Have a good weekend. The only big plan so far is baking a red velvet cake with creme cheese frosting, then whatever frosting is left, is mine. YUM-O

Thursday, October 28, 2010

Any Help is GREATLY Appreciated

As some of you may know, I am doing something called Climb for a Cure. It is on November 18th in Milwaukee. I, along with 5 others, are climbing the US Bank Building. I believe it's 49 floors, 1,000 something steps. We are doing this to try to raise money for CF. As many of you know, donations are greatly appreciated now that we know the cure is only 2-5 years away! So, we are in need of any kind of donations, so they don't run out of money for research. Any amount is greatly appreciated. If you are able to help let me know. You can either email me or you can donate online at
It is greatly appreciated, or if you aren't doing anything on November 18th from 6-9 p.m. in Milwaukee feel free to come along and climb. Let me know then we can register you. Keep me posted! Thanks

Best Appointment EVER!!

Okay, so I had another regular check up at my Dr's today. Now, i've always had good PFT(pulmonary function tests). My lung function has usually been around 93%ish. Never lower than that. So today I had PFT's at the dr, and they were GREAT! now, i'm going to try to explain this right. so here it goes :)
Now out of 50 women my height (5'4) with NO cf they predicted that I should be blowing around a 101%. Not bad right. Well today I blew....97% AMAZING! I have never had PFT's that good. This is a very very good thing.
Now, i believe for percentile at 93% the percentile was 2.92 or 2.94. Well today at 97% I hit 3.04!
So basically to sum everything up, I'm the healthiest i've ever been!
I just had to share an update with everybody.
Not to much new news, other than we were told we should get our passports!! Shaweet. So I believe that on Friday this week we are going to get our passports(Me, my mom, and my one sister). My dad already has his passport for if he would want to go fishing in Canada.
Anyways. I will definetly update more when I know more. Have a good day!! =)

Monday, October 25, 2010

Amazing Photos 2.

***see first post***
the back of St. Josephs Cathedral


The front

the front of the cathedral

the cathedrals so tall it won't fit into one picture

Amazing Photos

This weekend, I went with my confirmation class, and we went on a vacation to visit different churches. Wonderful churches. I have never seen some more beautiful churches in my whole life than I have this weekend. We went go a church(St. James the less). It is a great church. Everything is marble and OH-MY-GOODNESS! i fell in love with this church. I was unable to get pictures of this church, i am dissapointed at this, but we also went to Our Lady of Guadalupe Shrine, we went to the Diocesan Center Chapel(where we got to meet the Bishop), and we went to St. Joseph's cathedral(where they do ordinations, like if a priest or bishop is getting ordained-i believe that's the correct meaning-this Cathedral is where it's done, where the priests or bishop lays on the floor. Now this post is only because of how much I love the Lord. I pray everyday, and thank God for everything. I am a strong believer, and if it wasn't for him, i don't know what i'd do. So here are some pictures. Enjoy!!

St. Joseph's Cathedral
at the Shrine, this is a place of just candles. You can pay to have a candle lit for 2 weeks, 1 month, or a year.
the back of the Shrine chapel.
The front of the Shrine chapel.(we had a mass)
outside of the shrine(a seperate building from it).
part of the front of the shrine. it's hard to see, but there's 2 big i believe bronze doors and 2 smaller ones. the smaller ones i believe cost $38,000 a piece. WOW. and boy were they heavy.

Sunday, October 24, 2010

and my wish is...

So, someone did guess my wish. so now it's time to reveal my wish if you haven't already read the comment from the last post.
My Wish go to Bora Bora, Tahiti.
now, why i want to go to Bora Bora:
I want to go to Bora Bora, Tahiti because I don't think I will ever get another chance in life to go. Going to Bora Bora has been a dream of mine. I want to go there, because it's the only place i've ever seen that has glass bottom floor huts over the ocean, where you can look down and see the fish swimming underneath. You can go to the deck of your hut, and just jump right in to the most beautiful body of water I've ever seen. You can swim under your hut, and look up into your hut through the glass floor. I have never seen a body of water so blue, so calm, so peaceful than in Bora Bora. I want to expierence the breathtaking views, feeding the sharks and stingrays. I want to see the sunset and sunrise. To me, Bora Bora is Paradise. I want to horseback ride on the beach of Bora Bora as the sun is setting. I want to go parasailing and see the many views of Bora Bora. I want to see Mount Pahia with the pretty village of Vaitape at the base. I want to expierence the look of black rocks. I want to expierence seeing black pearls from Tahiti. I maily want to go to Bora Bora, Tahiti because I don't know if I will ever get the chance to go and this is a once in a lifetime opportunity, and wish i will never forget.

Friday, October 22, 2010

Maybe this will help....

I will give another picture, but here is another hint.
this place is about a 13-15 hour plane ride(from the U.S. to this place), then 20 minute by private plane, and another 5 minutes by boat. Maybe this will help. Again if you guess and it is the correct answer i will definetly tell you yes or no, and then announce that someone guessed it. :) Enjoy!!

Tuesday, October 19, 2010

Another Make~A~Wish Hint

i know i havent updated or posted anything about Make~A~Wish, so i thought this would be a great time to update.
so, we've heard from Make~A~Wish. my dr's approved my wish. now, my wish is an "International" trip, which means we have to get our passports then they start to plan the trip, because it all depends on how long the passports take. so we're hoping for sometime early next year.
so with that, i'm very excited. I've already started shopping(i only bought a purse, a pair of sandals, and sunglasses)
all i'm going to say for now is its an international trip(out of the country), and it's in the middle of the Ocean :), and it's over 13 hours of flying. it requires planes, and a boat to get there :)
so with that, if you feel like guessing let me know if you have any ideas, and if you get it right, i will definetly tell you.
here's a picture maybe it'll help

Sunday, October 17, 2010

What if?

this post, is about a song I've been listening to lately. josh groban's song you raise me up. this song makes me tear up every time i hear it. i just absolutely love the meaning of it, and the words are so unbelievable. this song is also my grandpa's favorite song. he is 87 years old, and has some health challenges, but he's still cookin' :)
i believe that CF raise's me up. i always ask my self questions...what if?
what if i didn't have cf...would i be who i am today?
what if i didn't have cf...would i have written a book?
what if i didn't have cf...would i be homeschooled?
what if i didn't have cf...would i love the way i love?
what if i didn't have cf...would my love for the lord be the same?
what if i didn't have cf...would i know the wonderful people i do today?
what if i didn't have cf...would i have met the great people i have?
what if i didn't have cf...would i have not had the outlook on life i do today?
what if i didn't have cf...would i have the urge to make a difference in people's lives?
what if i didn't have cf...would i have the urge to make a difference in the world?
i think about those 2 words over and over and over again.
day after day after day after day.
i try not to think of those questions often, because i believe having cf has made me a better person, and has risen me up to look on life in a different way. would i be the person i am today if it wasn't for CF?
Absolutely not.
Cf has formed me into the person i am today for a reason and i wouldnt have it any other way. i am so happy to have CF. I believe that by having CF, it has risen me up into the person I am.
I love the lyrics "You raise me up". My favorite lyrics are;
"you raise me up so i can stand on mountains;
you raise me up to walk on stormy seas;
i am strong when i am on your shoulders;
you raise me up to more than i can be"
I believe that CF has risen me up so I can stand on mountains. CF has risen me up so I can walk on stormy seas. CF has made me strong, and CF has risen me up to be more than I can be.
It has made me the person I am today. It has formed me into the person I am toay. I am so blessed and honored to have CF. I love CF, and I think of it as a Gift because i believe that God knows I am strong enough to handle it, and I am never ever going to stop fighting for a cure for CF. i am going to do everything and anything I can to find a cure for CF, and if what researchers say is true, in 5 years our prayers have been answered.
I am so thankful for CF, for raising me up into the person i am today.

Wednesday, October 13, 2010

Here they are, PICTURES!

Love you Roxy :'(
R.I.P. Roxy baby :)
Bo got shaved, :)
My uncle sold his farm and last Thursday was the cow auction, and this was my favorite cow, "Mama Red".
I bought myself my first vehicle for when I get my license on November 12th :)
Yes, another animal.
My IV sort-of in my wrist.
it's hard to see, but here's the bad bruise(its harder to see on a picture)

It's a fake tatoo, I found a pack of fake ones when I was cleaning one day so I ocasionally put one on. :)


Okay, so i've been trying to do a video post, and it won't let me grr. I've also been trying to post pictures, and it won't let me grr. Oh, the love for technology. So I'm going to do an update, and keep trying on those other things.
So, first my mani/pedi was great! I will definetly be going back to get more. :)
I went to the Dr. on the 5th. Things look great, no new antibiotic. They took a throat culture to see if i'm still growing stenotrophomonas multiphilia. Now isn't that a long word. If I am still growing it they may consider antibiotics, but they didn't this time because my PFT's were doing good. I go back close to the end of this month. So please pray no more stenotrophomonas multiphilia. haha it's so fun to type that. anyways--
yesterday(Tuesday) there was some sad news at the Schreiber household. Our awesome loving dog, Roxy(our part lab, hound & boxer), decided to go to heaven sometime between 11:30 p.m. Monday night and 6:30 a.m. Tuesday morning. She was between 14-16. We've had her for about 8 years. She had been getting sick and had gotten worse over the weekend. Monday night we knew things were bad and took a turn for the worse. She stopped eating, drinking etc. So that night she wouldn't even get up to come inside, so my dad took a heated pad outside and put her on that. Well at 11:30 p.m. when I went to bed, she was gone. So that morning when my mom & dad found her she was laying all the way across the lawn facing my mom and dad's bedroom window(by looking in that window you can see through almost the whole house), so we knew she wanted to be watching us. We burried her there, it was her favorite place to lay, and now she can always watch over us. She is joining in heaven some family, and our other beloved animals. She's joining our 2 Siberian husky's. Max and Lady, and our Beagle Buckshot(sp). She is also joining our lovely kitty cat, Baby. Yes we've had lots of animals, my dad said no more, it gets harder and harder with each animal you have. So R.I.P. Roxy Boxy. She died on October 12th. Exactly one month before my birthday(November 12th).
So, it's a lot, but I promised I would update. I do apologize for the delay though, we had our roof reshingled, and it messed up our internet dish so we had to wait until yesterday for the guy to come out and fix it.
I will keep trying to post the video and pictures I promise.