The Joys of having CF

The Joys of having CF

Tuesday, December 28, 2010

Different Life

I've often thought what my life would be like if I didn't have CF. I've made a list of things on how my life would be w/o CF.

Top 10 things I could do w/o having CF:
*No VEST
*No Nebs
*No Pills
*No extra 45-60 minute extra therapies 2 times a day(everyday)
*No getting up an hour early to do something so I can fit in therapies
*No hospital visits
*No going to the Doctor every 3 months
*No having to bring all vest equipment, and meds on vacation or to sleep overs etc
*No pancrease or lung issues
*I could take a Clean Wonderful Breath of Air

Now I want to share the Wonderful Top 10 things I LOVE about having CF

The Top 10 advantages I have with having CF:
*Becoming a bigger believer in God
*Meeting wonderful Doctors, Nurses & Friends
*Having a wonderful support team behind me every step of the way
*Have the strength to know what some child or people are going through, and are able to help them through it
*Helping Others, and trying to make a difference in people's lives
*Writing books, to help people
*Being an understanding person
*Knowing the true meaning of, "life's not measured by the number of breaths we take, but by the moments that take our breath away"
*Knowing the true meaning of Life, knowing how to live my life to the fullest EVERYDAY!

This is a list I've come up with, and I would NEVER wish my life to be any other way than it would be with out CF. I love having CF and would never wish my life to be any other way. I am so blessed beyond words to be so blessed with having CF.

Friday, December 24, 2010

Merry Christmas!

I just want to wish everyone a VERY Merry Christmas



Tuesday, December 21, 2010

CF Jingle :)

I got an email today from the Cystic Fibrosis Foundation (it was a Holiday Greetings), and there was this cute little jingle/song included in the email and I thought you'd enjoy it.
It is supposed to be sung to the tune of Jingle Bells :) Enjoy!!

CFF, CFF, working everyday
Raising Funds and blowing trails to blow CF away
CFF, CFF, working everyday
Research in the past ten years has really paved the way!

Since they've mapped the gene, the future's getting bright
Helping all those with CF to really win their fight
When dedicated Docs and drug research align
More than 30 therapies are in the drug pipeline.

CFF, CFF, working everyday
Raising Funds and blowing trails to blow CF away
CFF, CFF, working everyday
Research in the past ten years has really paved the way!

VX-770 and Azithromycin
Hypertonic Saline, VX-809, and Cayston
All the strides we've made, each single step is sweet
Hoping in the next ten years, it's CF we will beat.

CFF, CFF, working everyday
Raising Funds and blowing trails to blow CF away
CFF, CFF, working everyday
Research in the past ten years has really paved the way!

Sunday, December 19, 2010

.....

wow...it's hard to believe that Christmas is in 6 days!!! yikes! where has this year gone? this year seems as though it has gone by right before my eyes.
today(Sunday) we had Christmas with my mom's side of the family, her brother, my aunt, their son, and my 2 sisters. my grandparents weren't there because they moved to Florida. oh how I would love to spend Christmas in the warm weather, but like I always say, it isn't Christmas without snow(but it can leave the next day) :)
on Friday(Christmas Eve) we will be going to church, because hopefully our church is having their pagent. then Saturday we go to my dad's parents :)
this year has gone so quick it's hard to keep track of where the time went. i believe 2011 is going to be the year we all remember. let's make good memories in 2011, and make it one of the best years ever!!
this year I have had a saying/quote stuck in my head, and it is going to be my motto for 2011, it comes from Bon Jovi's song Livin' on a Prayer. My motto for 2011 is going to be, "you live for the fight when it's all that you've got".
I hope everybody makes 2011 one of the best years possible. Let's make memories that will last a lifetime. Let's make 2011 known for something-like the year to thrive!
If I don't post before Christmas I hope everybody has a wonderful holiday :)

"you live for the fight when it's all that you've got"

Christmas last year, from left to right: Steph(sister), Me & Bo, Sam(sister) and Riley(cousin)

Tuesday, December 14, 2010

We're going to Bora Bora in....

March!!! we got the phone call yesterday(Monday) that the trip will be 9 days(2 days for travel). 7 days total in Bora Bora. We are going to leave at night, so then we get to Bora Bora in the morning(their time) or something like that :)
We are looking at going sometime in March. I'm so excited. It's going to be so amazing.
So I can't wait till the time gets closer, then we can schedule my hair appt(i must get it colored for Bora Bora) haha. Then a group of my friends and I can get mani/pedi's(and try to convince my mom to get her fake nails again). Oh, and did I mention shopping?!?!. We must get some new summer clothes.
I'm so excited to be able to relax with my family and enjoy each other. It is going to be such a memorable moment. Memories will be created-in paradise. We are going to one of the most beautiful islands in the world. This trip is going to be amazing, but I wish all of you could expierence this feeling. It seems not real. I think about it all the time, but it still doesn't seem real. It hasn't set in yet. I just have this feeling in my heart that I wish everybody could feel, a feeling of honor, and excitment. Even with planning the trip it still doesn't seem real. I'm just so amazed and so honored, and I hope everyone gets to have their one wish come true one day. because it's magical. It's a miracle. It's a Dream Come True.

Thursday, December 9, 2010

My Confirmation

Last Sunday(December 5th) I recieved the sacrament of Confirmation, where I am officially considered a member/adult to our church. I got to spend it with my family, and friends. I had an unexpected surprise from my godmother(who lives in Illinois) and her daughter(my cousin). It was a wonderful surprise, and it made my day very special. I just wanted to share some photos from that day with all of you. Oh, and yes there was lots of talking about Bora Bora :) Enjoy!
After Confirmation with my sisters. (left to right: Me(and Bo), Sam, and Steph).

BO
Me and Bo :)

My Cake(we forgot to take a picture before mom cut it) hehe
My sponsor and I with our priest and Bishop. (left to right: my uncle DaWayne-Sponsor, Me, The Bishop, and our priest-Fr. Nathan)
This picture's hard to see, but this is me doing one of the readings during mass.
and lastly the best surprise of all, my aunt and cousin :)

Thursday, December 2, 2010

~Reality hasn't set in yet~

Wow! 24 hours ago I found out that my Make~A~Wish had come true. I will be going to Bora Bora, Tahiti. I'm so excited, but it seems so surreal that i'm actually going. I'm very very excited.
I keep thinking, wow why did God pick me to deserve this. He is so wonderful. I pray every night and thank him for allowing my life to be so wonderful, and I pray for everyone who has CF.
Now is the exciting part, waiting for that phone call or email asking what dates work so they can start planning the trip. I can't wait. I can't wait to go get mani/pedi's before we leave, and get my hair done, and get some new clothes etc...I just wish all of you guys could expierence what this wonderful feeling.
I will definetly keep everybody posted.

Can you believe i'm going there!?!?

Wednesday, December 1, 2010

Did my wish get approved????

YES!!!!!!!!! I'm going to BORA BORA!!! oh, this is just the best day ever! I can't wait to know when we are going. Now they are going to start planning the trip. I'm hoping for January :) when it's very cold here in Wisconsin. hehe. I will keep everyone updated.
Oh...this is the most wonderful time of the year :)

Monday, November 29, 2010

In just 24 hours...

In just 24 hours, we should know when we are going to Bora Bora, Tahiti. Woohoo!! I'm so excited to see what the board says. I'm 102% positive the board is going to approve my wish. I'm hoping we go to Bora Bora in January or March(when it's cold here in Wisconsin hehe). I'm hoping closer to January. I can't wait to go to Bora Bora. I'm soo excited. I can't wait to go get my hair done before we go. I can't wait to go get mani/pedi's with my closest family friends before we go. This trip is going to be soo exciting. It's truely going to be a wish come true, and a trip of lifetime that I'll remember forever. This trip is going to give my family and I a time to just relax and spend quality time together.
Well this chica needs some sleep :) will let everyone know as soon as I know anything!!

Saturday, November 27, 2010

3 days!!!

Wow!! in just 3 days we'll know whether or not the board approved my wish to bora bora, and then the planning will start. i am 101% positive that the Make~A~Wish board will approve the wish. the only anticipation now is finding out when we go! i am exited beond words. this is truely a wish of a lifetime that i and my family will remember forever! so--i will DEFINETLY let everyone know what the board said, and when the soonest possibitlity is we could go :)
on another note, i hope everybody had a wonderful Thanksgiving. i had a great one. spent it with wonderful family.
today is my wonderful supporting and loving mommy's birthday :) she is the best mom a girl(especially with cf) could ask for. instead of her title being M.D. or Dr. her most wonderful title for me is M.O.M. Happy Birthday mom! Love you :)


**notice the white netting :) this is in September 09' a day or 2 after i came out of the hospital**

and lastly, i wanted to share a wonderful poem i read at a craft sale today. it was beautiful. it could almost bring you to tears. Enjoy this read:

Spending Christmas with Jesus Christ

I see the countless Christmas trees
Around the world below,
With tiny lights like heavens stars
Reflecting in the snow.

The sight is so spectacular
Please wipe away that tear
For i'm spending Christmas
With Jesus Christ this year.

I hear the many Christmas songs
That people hold so dear
But earthly music can't compare
With the Christmas choir up here.

I have no words to tell you
The joy their voices bring
For its beyond description
To hear the angels sing.

I know how much you miss me
Trust God and have no fear
For im spending Christmas
With Jesus Christ this year.

I can't tell you of the splendor
Or the peace here in this place.
Can you imagine Christmas
With our savior, face to face?

May God uplift your spirit
As i tell him of your love
Then pray for one another
As you lift your eyes above.

So let your hearts be joyful
And let your spirits sing
For i'm spending Christmas in Heaven
And i'm walking with the King.

Friday, November 19, 2010

WE DID IT #2

Last 2 pictures :)


Before heading down for supper :) Rob had to leave early(and he finished before all of us), so from left to right (Deanna, Mike, Me, Jennifer, Daniel)



The morning after, and feeling great :)



WE DID IT!!

So, WE DID IT!!! We climbed 47 floors, 94 flights, and 1,034 steps. It was hard but we did it. There was NO-WAY i was quitting. It wasn't a matter of winning first, it was a matter of finishing that mattered. I am so proud of my team for finishing. It only took my uncle(in the red) 11 minutes to finish. It took my dad and are other friend Mike around 13 or 14 minutes, and it took our friend Deanna 23 minutes, and it took my mom and I 24 minutes. Trust me it seemed like it took forever, but it was such a great acomplishment, and I don't believe in quitting. I was so proud that I finished. There was also a lady there who had recieved a double-lung transplant last year and she climed the whole thing. I am also very pround of the fire fighters, and police officers. The fire fighters and police officers climed the whole thing, and they had to wear full uniform!! Airtanks and all. and police officers had to wear bullet proof vests and all. I am so thankful that they do this for CF. It means so much to me that they did that for us, and for CF. The winner of the climb, I believe the guy was in his late 40's early 50's. He finished in 4-5 minutes, and this is the huge part. He was a Fire Fighter, and WON in FULL UNIFORM!!! WOW!! that is impressive. I am so honored, and want to say Thank You to all of them for climbing, and I want to also say Thank You to my team. We are definetly doing it next year(oh, and training better before also).


(my number-I wore mine on the back of my shirt)

My team-from left to right(Mom, Mike, Rob, Dad, Deanna, and Me)
Before we headed down to the start line.

one of the MANY fire fighters


2 of the many fire fighters getting ready to start the climb.



another fire fighter who wore his air mask and everything

crossing the finish line!


Deanna crossing the finish line!



GO TO SECOND POST




















Wednesday, November 17, 2010

WOOHOO!!

Update: PASSPORTS ARE IN!!!!! we got them in the mail today. Hooray!! will post more later :)

Tuesday, November 16, 2010

48 Hours Away


In almost exactly 48 hours I along with 5 others will be "Climbing for A Cure". I'm very excited, and still thinking i'm crazy BUT it's for a good cause. I will try to remember to take pictures of the event, and post them. Will let you all know how the climb went :)

Sunday, November 14, 2010

Sweet 16

Well, i haven't posted for a few days...so here goes. well as some of you may or may not know, on Friday November 12th, I celebrated my 16th birthday. for those of you who have CF you know how wonderful every birthday is. It's truely amazing. then I also got my license! Yay!! it's very cool. I do already have a car, and now i can actually drive it by myself. It was truely a great and wonderful thing. I can't wait for sometime this week or next week, because we are going to a local pub & brewery(The Great Dane) for my b-day. it's supposed to be sooo good. we ran out of time on Friday because mom and I had to be in Milwaukee, WI later that evening(where i got to spend my b-day with wonderful friends). and this coming Thursday we're doing our climb for a cure. i think i was crazy. yikes!! but it will all be good. we'll have fun, and the best part is knowing that the money we raise goes to improving the cure for CF. oh, and another thing this snow is crazy! at least it waited till after my drive test but man, are we in for a white christmas, and is it just me or is christmas music on a little early? i think yes. but hey that's okay i love christmas. it's the most wonderful time of the year :)

Tuesday, November 9, 2010

Holy Man!!

holy man...in just 9 days!!!! i along with 5 others will be climbing the U.S. Bank building in Milwaukee WI to raise $ for Cystic Fibrosis to help find a cure. now i think i must have been crazy when i signed up for this but in just 9 days i'll be climbing 47 floors, 97 fleights, 1,034 steps..holy man!!! Pray for me. but this is a very crucial time in the CF community because they've found the cure for CF, and we are in need of raising $ so they can keep researching. so if you are able to at all, dontate anything no donation is to small please email me at paige_cf_94@yahoo.com or visit http://www.cff.org/LWC/dsp_DonationPage.cfm?idEvent=12012&idUser=421723&source=SNFB

Let's make CF stand for CURE FOUND!!!

Monday, November 8, 2010

no news is good news :)

well no word from Make~A~Wish yet :( we sent in for our passports last monday-November 1st. my wish coordinators are 99.99% positive that the Make~A~Wish board will approve my wish.
now, my original wish(s) was to meet my ultimate ultimate favorite person(s) in the world. John Travolta or Rascal Flatts. Now that is what I was originally going to wish for, but with Make~A~Wish you can only get a wish until your 18 then you don't qualify anymore. well with celebrity wish's it can take 2+ years to make them granted, and by that time i'd be 18. so i decided on a trip, because i know someday their is always a way to meet John Travolta and Rascal Flatts. if there's a will there's a way. anyways, we had friends that went to Bora Bora and LOVED it. they said it was breath-taking. so i started doing research on it and found it to be amazing! i immedietly new it was it, especially when i say the huts over the ocean with glass bottom floors, and found out the whole island was only around 35 miles. i love water and i new the minute i saw the glass bottom floor huts. it was it. so anyways...
i am super excited to go to Bora Bora, Tahiti! especially if it's between January-March of next year, becaust that's when its super cold here! i can't wait to go shopping in Bora Bora. I can't wait to wear my new croc sandals :) and use my new purse. I am super excited to go get a few new clothes, but what I'm most excited about is being able to spend a care-free, stress-free week with my family. the one's i love the most. my greatest supporters. the ones who are always there for me. i wish everybody could expierence the feeling of knowing that this is a once in a life-time opportunity. it's the most amazing feeling in the world. but the one thing i really wish is that i could bring everybody in my family with me, because i know most of the people in my family will never get an opportunity like this. i so badly want everyone to get this opportunity.
i can't wait till one day i can give $$$ to the Make~A~Wish foundation so more children with illness's or are loosing their battle to soon, can get their one wish in life. i so wish for children who loose their battle to soon, i hope they are able to get their one. last. wish. they will remember it forever.



This picture is a picture of some of the huts over the ocean where you stay :)




This picture is of the glass bottom floor-to the left is a couch, and to the right is the bed. you can swim under the huts...so i told my dad one morning i'll swim under and knock on the glass and wave to him :)

Thursday, November 4, 2010

Oh, the love for technology & an Update!

Okay, so first I have to complain about technology. I had great intentions of doing a blog post earlier tonight(Wednesday), but all of a sudden out of the blue, our internet stopped working for about 3 hours. What the heck! Mom couldn't figure it out. The bill had just been paid, so it couldn't be that, there's no storms, no rain, no snow, what could it be. So she tried to call customer servicer, and no luck. It was busy. So anyways about 10 minutes ago 11:55 p.m. it started working. WTH!?!?!? Oh, the love for technology.
And another thing, has anybody been woken up in the middle of the night because their phone decides to finally recieve a text message from...5 hours ago CRAZY!
Anyways...sorry for the ramblings :)
***UPDATE on Make~A~Wish***
Okay so on Monday(November 1, 2010) we(mom, me, and my sister) sent our passports in. woohoo! then we emailed our wish fairy/cordnater. She said that in the next week or so the board should have made their decision whether or not to approve it. I am 105% positive they are going to approve it, heck one of the people said that she wanted to go with :)

Well I will keep everybody updated! This girl needs some sleep :)

Monday, November 1, 2010

If you can: Help is GREATLY appreciated

As some of you may know, I am doing something called Climb for a Cure. It is on November 18th in Milwaukee. I, along with 5 others, are climbing the US Bank Building. It is 47 floors, 94 flights, and 1,034 steps. We are doing this to try to raise money for CF. As many of you know, donatios are greatly appreciated now that we know the cure is only 2-5 years away! We are in need of all donations possible! so they don't run out of money for research. Any amount small or large is apreciated. If you are able to help please let me know. You can contace me via email: paige_cf_94@yahoo.com or leave a comment, or donate online. at http://www.cff.org/LWC/dsp_DonationPage.cfm?idEvent=12012&idUser=421723&source=SNFB
All donations are tax deductible. It is greatly appreciated, or HEY if you aren't doing anything on November 18th from 6-9 p.m. in Milwaukee feel free to come along and climb. Let me know then we can get you registered. Keep me posted! Thanks

Sunday, October 31, 2010

Enough Said

My 2 favorite quotes right now:

"champions;are made in the one more fight"

"if you take the easy out of life, you life will be hard. but if you take the hard way in life, your life will get easier"

Friday, October 29, 2010

I love this story(even if it may be fake)

I came across this story multiple times. whether it be on facebook, emails, but mostly forwarded text messages. I recieved it again today, and decided I'm going to post this. Now, I know that this story may be totally fake, but I don't care, I just love the meaning of it, even if it isn't a true story. If it was it would be a great story. Most of you have probably read this already, but hope you enjoy =)

"A girl and guy were speeding over 100 mph on the road on a motorcycle.
Girl: Slow down. I'm scared.
Guy: No this is fun.
Girl: No it's not. Please, it's too scary!
Guy: Then tell me you love me.
Girl: Fine, I love you. Slow down!
Guy: Now give me a BIG hug.
---girl hugs him---
Guy: Can you take my helmet off and put it on yourself? It's bugging me.

(in the paper the next day): A motorcycle has crashed into a building because of brake failure. Two people were on it, but only one survived.

The truth was that halfway down the road, the guy realized that his brakes broke, but he didn't want to let the girl know. Instead, he had her say she loved him and felt her hug one last time, then had her wear his helmet so that she would live even though it meant that he would die."

I know it may be fake, but i thought it was just a cute story :)
Have a good weekend. The only big plan so far is baking a red velvet cake with creme cheese frosting, then whatever frosting is left, is mine. YUM-O

Thursday, October 28, 2010

Any Help is GREATLY Appreciated

As some of you may know, I am doing something called Climb for a Cure. It is on November 18th in Milwaukee. I, along with 5 others, are climbing the US Bank Building. I believe it's 49 floors, 1,000 something steps. We are doing this to try to raise money for CF. As many of you know, donations are greatly appreciated now that we know the cure is only 2-5 years away! So, we are in need of any kind of donations, so they don't run out of money for research. Any amount is greatly appreciated. If you are able to help let me know. You can either email me paige_cf_94@yahoo.com or you can donate online at http://www.cff.org/LWC/dsp_DonationPage.cfm?idEvent=12012&idUser=421723&source=SNFB
It is greatly appreciated, or if you aren't doing anything on November 18th from 6-9 p.m. in Milwaukee feel free to come along and climb. Let me know then we can register you. Keep me posted! Thanks

Best Appointment EVER!!

Okay, so I had another regular check up at my Dr's today. Now, i've always had good PFT(pulmonary function tests). My lung function has usually been around 93%ish. Never lower than that. So today I had PFT's at the dr, and they were GREAT! now, i'm going to try to explain this right. so here it goes :)
Now out of 50 women my height (5'4) with NO cf they predicted that I should be blowing around a 101%. Not bad right. Well today I blew....97% AMAZING! I have never had PFT's that good. This is a very very good thing.
Now, i believe for percentile at 93% the percentile was 2.92 or 2.94. Well today at 97% I hit 3.04!
So basically to sum everything up, I'm the healthiest i've ever been!
I just had to share an update with everybody.
***Make~A~Wish***update.
Not to much new news, other than we were told we should get our passports!! Shaweet. So I believe that on Friday this week we are going to get our passports(Me, my mom, and my one sister). My dad already has his passport for if he would want to go fishing in Canada.
Anyways. I will definetly update more when I know more. Have a good day!! =)

Monday, October 25, 2010

Amazing Photos 2.

***see first post***
the back of St. Josephs Cathedral

again...



The front







the front of the cathedral




the cathedrals so tall it won't fit into one picture

Amazing Photos

This weekend, I went with my confirmation class, and we went on a vacation to visit different churches. Wonderful churches. I have never seen some more beautiful churches in my whole life than I have this weekend. We went go a church(St. James the less). It is a great church. Everything is marble and OH-MY-GOODNESS! i fell in love with this church. I was unable to get pictures of this church, i am dissapointed at this, but we also went to Our Lady of Guadalupe Shrine, we went to the Diocesan Center Chapel(where we got to meet the Bishop), and we went to St. Joseph's cathedral(where they do ordinations, like if a priest or bishop is getting ordained-i believe that's the correct meaning-this Cathedral is where it's done, where the priests or bishop lays on the floor. Now this post is only because of how much I love the Lord. I pray everyday, and thank God for everything. I am a strong believer, and if it wasn't for him, i don't know what i'd do. So here are some pictures. Enjoy!!


St. Joseph's Cathedral
at the Shrine, this is a place of just candles. You can pay to have a candle lit for 2 weeks, 1 month, or a year.
the back of the Shrine chapel.
The front of the Shrine chapel.(we had a mass)
outside of the shrine(a seperate building from it).
part of the front of the shrine. it's hard to see, but there's 2 big i believe bronze doors and 2 smaller ones. the smaller ones i believe cost $38,000 a piece. WOW. and boy were they heavy.

Sunday, October 24, 2010

and my wish is...

So, someone did guess my wish. so now it's time to reveal my wish if you haven't already read the comment from the last post.
My Wish is...to go to Bora Bora, Tahiti.
now, why i want to go to Bora Bora:
I want to go to Bora Bora, Tahiti because I don't think I will ever get another chance in life to go. Going to Bora Bora has been a dream of mine. I want to go there, because it's the only place i've ever seen that has glass bottom floor huts over the ocean, where you can look down and see the fish swimming underneath. You can go to the deck of your hut, and just jump right in to the most beautiful body of water I've ever seen. You can swim under your hut, and look up into your hut through the glass floor. I have never seen a body of water so blue, so calm, so peaceful than in Bora Bora. I want to expierence the breathtaking views, feeding the sharks and stingrays. I want to see the sunset and sunrise. To me, Bora Bora is Paradise. I want to horseback ride on the beach of Bora Bora as the sun is setting. I want to go parasailing and see the many views of Bora Bora. I want to see Mount Pahia with the pretty village of Vaitape at the base. I want to expierence the look of black rocks. I want to expierence seeing black pearls from Tahiti. I maily want to go to Bora Bora, Tahiti because I don't know if I will ever get the chance to go and this is a once in a lifetime opportunity, and wish i will never forget.

Friday, October 22, 2010

Maybe this will help....

I will give another picture, but here is another hint.
this place is about a 13-15 hour plane ride(from the U.S. to this place), then 20 minute by private plane, and another 5 minutes by boat. Maybe this will help. Again if you guess and it is the correct answer i will definetly tell you yes or no, and then announce that someone guessed it. :) Enjoy!!



Tuesday, October 19, 2010

Another Make~A~Wish Hint

i know i havent updated or posted anything about Make~A~Wish, so i thought this would be a great time to update.
so, we've heard from Make~A~Wish. my dr's approved my wish. now, my wish is an "International" trip, which means we have to get our passports then they start to plan the trip, because it all depends on how long the passports take. so we're hoping for sometime early next year.
so with that, i'm very excited. I've already started shopping(i only bought a purse, a pair of sandals, and sunglasses)
all i'm going to say for now is its an international trip(out of the country), and it's in the middle of the Ocean :), and it's over 13 hours of flying. it requires planes, and a boat to get there :)
so with that, if you feel like guessing let me know if you have any ideas, and if you get it right, i will definetly tell you.
here's a picture maybe it'll help

Sunday, October 17, 2010

What if?

this post, is about a song I've been listening to lately. josh groban's song you raise me up. this song makes me tear up every time i hear it. i just absolutely love the meaning of it, and the words are so unbelievable. this song is also my grandpa's favorite song. he is 87 years old, and has some health challenges, but he's still cookin' :)
i believe that CF raise's me up. i always ask my self questions...what if?
what if i didn't have cf...would i be who i am today?
what if i didn't have cf...would i have written a book?
what if i didn't have cf...would i be homeschooled?
what if i didn't have cf...would i love the way i love?
what if i didn't have cf...would my love for the lord be the same?
what if i didn't have cf...would i know the wonderful people i do today?
what if i didn't have cf...would i have met the great people i have?
what if i didn't have cf...would i have not had the outlook on life i do today?
what if i didn't have cf...would i have the urge to make a difference in people's lives?
what if i didn't have cf...would i have the urge to make a difference in the world?
WHAT IF? WHAT IF? WHAT IF? WHAT IF? WHAT IF? WHAT IF?
i think about those 2 words over and over and over again.
day after day after day after day.
i try not to think of those questions often, because i believe having cf has made me a better person, and has risen me up to look on life in a different way. would i be the person i am today if it wasn't for CF?
Absolutely not.
Cf has formed me into the person i am today for a reason and i wouldnt have it any other way. i am so happy to have CF. I believe that by having CF, it has risen me up into the person I am.
I love the lyrics "You raise me up". My favorite lyrics are;
"you raise me up so i can stand on mountains;
you raise me up to walk on stormy seas;
i am strong when i am on your shoulders;
you raise me up to more than i can be"
I believe that CF has risen me up so I can stand on mountains. CF has risen me up so I can walk on stormy seas. CF has made me strong, and CF has risen me up to be more than I can be.
It has made me the person I am today. It has formed me into the person I am toay. I am so blessed and honored to have CF. I love CF, and I think of it as a Gift because i believe that God knows I am strong enough to handle it, and I am never ever going to stop fighting for a cure for CF. i am going to do everything and anything I can to find a cure for CF, and if what researchers say is true, in 5 years our prayers have been answered.
I am so thankful for CF, for raising me up into the person i am today.

Wednesday, October 13, 2010

Here they are, PICTURES!

Love you Roxy :'(
R.I.P. Roxy baby :)
Bo got shaved, :)
My uncle sold his farm and last Thursday was the cow auction, and this was my favorite cow, "Mama Red".
I bought myself my first vehicle for when I get my license on November 12th :)
Yes, another animal.
My IV sort-of in my wrist.
again...
it's hard to see, but here's the bad bruise(its harder to see on a picture)


It's a fake tatoo, I found a pack of fake ones when I was cleaning one day so I ocasionally put one on. :)