The Joys of having CF

The Joys of having CF

Thursday, November 29, 2012

And That's A Wrap!

Hello, so I have been missing in action the last month, and I've been dying to tell you all about some great things going on in my life.  I haven't been sick lately-which is great with these silly temperatures Wisconsin has been having.  On November 12th i turned 18 years old. It was a big milestone for me because when i was diagnosed with CF the doctors told my parents that I probably wouldn't live to see my 18th birthday. It was GREAT!!! My parents and my great friends George & Jill, surprised me with a trip to Beverly Hills, CA. It has been my dream to go there and I was stoked. We spent most of our time on Rodeo Dr., ate amazing food, saw an awesome show at the Dolbe Theatre (previously known as the Kodak theatre-where the Grammy's and or Oscars are hosted), saw John Travolta's star on the Hollywood Walk of Fame, and spent time at our friends hotel. They stayed at the Beverly Wilshire hotel. It was truly an amazing trip, definitely going back soon. We had a great Thanksgiving, spent with family and my cousin and I went out and braved black Friday, it wasn't to bad and we got some great deals. Lastly, it is only 2 weeks until my oldest sister gets married. So excited for her. I hope everyone else is doing well.

So anyways that's a Wrap! This will be my last blog post until probably January: reason being is I am wrapping up my last 205 posts and going to start writing a second book with my blog posts. I hope to have it done in the next year to year in a half. I am excited to share it with you, so I'll be working on that. So that's why this is a Wrap. You can still follow me on Twitter @PaigeCF94, or instagram @PaigeCF94.

If I don't post before January I hope you all have a great holiday season, and see you next year!!!!

~GOD BLESS

Wednesday, October 24, 2012

A Letter to myself in 20 years


Dear 38 year old me. I hope in the last 20 years you've learned a lot about life. I hope you have learned to take time and "smell the roses", and not take life for granted. I hope you're proud of all you have accomplished.  I hope in the last 20 years you've reflected on your life and are proud of everything you've done. I hope you hit all your goals thus far. I hope by now you are married to the man of your dreams. I hope your dreams of becoming a mom have come true and that you've proven the doctors wrong when they've said in the past, "you probably won't be able to have kids", "it will be bad for your health". I hope you are a successful woman, and living your life to the fullest. I hope you've dreamed bigger than you ever have, and hit ever goal you've ever set. Also I hope you've had many failures in your past, to help make you a stronger person. I hope your relationship with God has become closer, and that you have committed your whole life to him. I hope you are a woman of faith and character. As you sit back and reflect on your 38 years of life, I hope you think to yourself, "have I done good"? Have I helped as many people as i possibly can? have I given all that I can to the Lord, and to charities. Have I done good in the world. Am I proud of who I have become? Have I taken the best care of my health so I can be around for another 20 years?  At the end of the day can you PROUDLY say to God, "I have committed myself to you, my whole life" and at the end of the day can you proudly say, "These 38 years of my life have been the most amazing time of my life", and at the end of the day I hope I thank God for every day he has blessed me with-and someday a long long time from now when you reach the golden arch in the sky, will God say to you "Well done my good and faithful servant".

~God Bless

Wednesday, October 3, 2012

Random Facts About Me

Most of the time on my blog I write about health updates regarding my illness-Cystic Fibrosis(CF).  I explain different things that might be going on in regards to my illness and I talk about my medications, treatments, etc. Well the other day I was thinking-I don't think I have ever done a non-CF blog. Maybe I have in the past I have, but It hasn't been for a long time, so I decided in this post today I am going to tell you some random facts about myself that you may or may not already know, to help you get to know me a little better :)

Random Facts:

1) I am a Christian-I try my best to live a christian lifestyle and pray each night before i go to bed, and go to church.
2) My dog, my baby, is my life!
3) My favorite music group is Rascal Flatts.
4) My current favorite song is "That's Why I Pray" by Big and Rich
5) My favorite actor is John Travolta.
6) I finished high school a whole year earlier because I was homeschooled online my last 3 years of highschool.
7) I drive a SUV.
8) I have an Iphone.
9) I don't watch much TV-we don't have it at our house, so i only watch it at my grandmas and I honestly don't care if I do or don't watch it.
10) My favorite books right now are 1913 by Oliver DeMille, and Freedom Shift by Oliver DeMille.
11) I'm not a political person, BUT I understand that politics are something thats very important in our country.
12) I have been to Bora Bora, Tahiti, Canada, Arizona, California, Colarodo, Florida, Georgia, Illinois, Indiana, Iowa, Kansas, Kentucky, Michigan, Minnesota, Missouri, New Jersey, New Mexico, New York, Ohio, Oklahoma, Pennsylvania, Tennessee, Texas, Wisconsin (my home state).
13) I love Starbucks.
14) I have a "thing" for designer handbags.
15) I love shoes.
16) I NEVER pay full price for ANYTHING (in regards to clothes, shoes, handbags etc..)!-I am the definition of a "sale shopper" and "always finding a good deal".
17) I have 2 older sisters, Samantha and Stephanie.
18) I love traveling.
19) I try to live my life to the fullest.
20) My favorite quote is; "Life's not measured by the number of breathes we take, but by the moments that take our breathe away."

Well I hope this helped you to get to know me a little more. If you ever have any questions please feel free to contact me on Twitter: @PaigeCF94, or the email on here, or through Facebook!

~God Bless

Thursday, September 27, 2012

PICC Free

Hello, Just wanted to write a quick update.  I am officially PICC free :) Last week Tuesday I got my IV taken out when I went to the doctor for my follow up visit.  My PFT's were back to my normal which is 95%.  Which is very good. I was proud of myself.
When I went to the doctor last Tuesday it was the first time in my 17 3/4 years (yes technical) of being alive that my dad took me to the doctor. (For those of you who don't know my dad, he is not one bit fond of IV, needles, blood, hospitals etc..) but I must say he did GREAT! He didn't get woozy or light headed :) I am very impressed. Then after the first stop we made---STARBUCKS! I love me a good salted caramel mocha this time of year :)  Then we went out for lunch/supper at Noodles and Company.  I kinda like dad/me days! Anyways there's not much that i know. Oh, on October 24th I have my CF annual studies which include glucose test, dexa scan, and Xray. Not to bad. Then I go back for my doctor appt. on November 1st.  We're trying to get all these appointments in before I turn 18-which is November 12th. So here are just a couple recent pictures. Enjoy!

                                                        During a dressing change.
                                                         PICC Free!
                                                        My main squeeze!


Off I go this early morning to go dog sit for a wonderful friend-who is someone I call my "adopted grandparents" I just love her and her husband. They're the best! And their dogs are so cute and I just love them all ;)

Have a great day! ~God Bless

Tuesday, September 11, 2012

1 week Update

Hello, so i have now been home officially one week from the hospital.  As I write this i am finishing up an IV medicine and then I'm off to bed.  Things have been going good. I have been able to go back to the gym-with light weight restrictions because of my arm.  This past weekend our good friends "adopted grandma" as we call her, they were up from out of town so my mom, dad, my cousin (Mariah)-*sidenote we are only a month apart in age-we're like sisters*, and I all headed up for the day to see them. It was a great time. We always enjoy seeing them. Love them immensely! They hadn't seen my cousin for a while so it was good a good surprise that we brought her with.
I go back to the doctor next week Tuesday for a follow up and to maybe get my IV pulled. Its the first time it's just my dad and i going. eek! it should all be good though :) Also in other news---on Saturday (Sept. 8) my dad turned 49! Can you believe it :) He didn't seem to appreciate it when i told him he was half way to 98 hehe. So anyways that's all for now-Here are some pictures of recent things, enjoy!
~God Bless

                                           My PICC Line.
                                         
                                                My view I had from my hospital room.
                                             Me & my cousin, Mariah.
                                                     Mariah & I.
                                                      Bo out in the town :)
                                                                   My Baby!

Tuesday, September 4, 2012

Clinic Update, Hospital, & 200th Post

A lot has happened since I last wrote. At the time of my last post I was going to the doctor for a checkup.  I had my PFT's and they were great, best ones I've ever had in my life. They were 98% which means I'm the healthiest I've ever been in my whole life.
Well after my appointment on the way home i started feeling very tired and wore out. I got a headache and everything. So mom drove home and i slept almost the whole way.  Well from there I got home and took a nap and by Friday I was sick. Not feeling good, headache it was horrible. On Saturday my headache was somewhat better but I started having this bad...cough.
Yep, lungs-great. See, whenever I have a great PFT, i somehow always end up sick after. I think the test triggers something in my lungs. Well by Sunday mom had called the on call doctor and he said go on Tobi. So i did and by Wednesday I just was not feeling any better. So mom called on Thursday and they wanted to admit me to the hospital on Friday.
So Thursday I packed and on Friday mom and I headed to the hospital. I got my PICC line-with no sedation-which was a shock, and thankfully i had a doctor put it in, and it was the easiest PICC ever even with all the scar tissue. The doctor was awesome and it was in in 15 min. Then I got back to my room and we started my antibiotics. Levaquin (the usual) and Meropenum (spelling?).  So I was there until today (Tuesday) I was supposed to go home yesterday (Monday) but w/the holiday things got miscummunicated. So we came home on home IV's for about 2-3 weeks, and I'll be good as new. I feel better already and I'm going to the gym Thursday :) So excited to go back.
Wow; what a long update. I'll try to update more often and post pictures soon. I have to go do my VEST and 5 Neb's (Albuteral, another Neb (forget the name), hypertonic saline, Pulmozime, and Colimisin (spelling). Hope you all have a good night and it's a special post because it's my 200TH blog post!!!!! Thank you to all who read my blog. It means a lot!!!
~God Bless

Wednesday, August 22, 2012

Update & Graduation

Hello; so I haven't really updated in a while, and I probably should. Where to begin: well to begin with I got approved for the CF physical education grant and am not actively joined in a gym, and loving it. Our goal is to help keep my lungs healthy and improve my lung function and also get toned up a bit.
Also, tomorrow (Thursday) I go to CF clinic for a check up. I'm pretty sure it will be a great appointment. I am not having annual studies until sometime in November-it had to get changed. So after my appointment mom and I are going out to eat-getting Starbucks (which is kind of my weakness) :-)  and then maybe do a little shopping. We'll see.
Lastly, on Saturday-August 18, I had my graduation party. Wow did a lot of people come. It was great seeing family and friends. I am so thankful for all the wonderful people who came out to help me celebrate my accomplishment-an accomplishment that 17 years ago my parents were told I would probably never live to see. It was a surreal, sweet day. I didn't get many pictures from my party but here is a picture of my amazing cake. It tasted amazing-as well as looked beautiful!
I will try to remember to update after my Dr. Appt. Have a great day.
~God Bless

Tuesday, August 14, 2012

Senior Pictures

Hello, so i thought i would share my senior pictures with you all. I had them taken about a month and a half ago.  I am having my graduation party soon and I am having one of my pictures on my cake. I hope you enjoy!
The pictures were taken by a great photographer;Lindsey Marie Photography. I highly suggest checking her out!



Have a great day. ~God Bless

Wednesday, July 18, 2012

Hello

Wow, so it's been a very long time since I've updated the blog. So here it goes; some things that have been going on. In June i had my senior pictures which was amazing, done by an amazing photographer; www.lindseymariephotography.com you can also find her on facebook.  This Friday we get to go preview them and place our order. Since finishing school, we/I are now in PARTY MODE! Yes, planning my graduation party. I'm very excited. Invitations are being sent out, and planning the cake (going to be ahh-mazing), and planning the food.  Also, we just got done having my sisters bridal shower last weekend. Which was a lot of fun. I was supposed to go to the doctor last week and have my annual studies, but my appt. got moved until next month, and then sometime in November I'll have annual studies. let's see what else, Oh; in August my "adopted grandma" is taking me to go see Toby Keith at a concert. I am very excited.
Health wise I've been good. I've been tweaking my meds and am now doing VEST 30 min in the morning and  60 min at night, and I seem to feel much better. I am also trying to increase my water intake-since its only healthy for me :) and lastly, I am waiting to hear back from a CF grant I applied for. It is a fitness grant to help try to improve lung function and your health. So I asked for a gym membership w/a trainer and I'm waiting to hear back. i am very excited to join a gym. I want to get into shape.
So anyways there is a brief update, I apologize it's scattered all over the place. I am going to try my best to update more. I've been terrible at it. Hope everyone's well. Here's a few pictures to enjoy.

                                            My sister's and I at Sam's bridal shower.
                                                   Of course, My Baby :)

~God Bless

Thursday, July 5, 2012

Bad Blogger

I have to apologize I haven't blogged in forever. I just noticed today that i need to update my blog. So I promise you that in the next few days I WILL update my blog and let you know all the things that have been happening and such. Hope you all had a great 4th of July and remember all those who have helped give us our freedoms. Don't take your freedoms for granted.
Write soon! ~God Bless

Friday, June 1, 2012

Goals

Remember in my last post how I talked about setting my goal to finish my high school year of school by May 2012, and how 2 years ago I had written it on my mirror. Well, I want to share something with you. Here:


This is what I wrote on my bathroom mirror 2 years ago. Can you tell? Look how the writing is faded. You know why I wrote it there? Because every morning and night when I'm brushing my teeth, or brushing my hair, I would have no choice but to look at it, and that motivated me. 
Now, I titled this post "Goals" because I think goals are something that are very important, and not thought of and need to be taught more. I've always been taught that if you write down your goal, somewhere where you can see it everyday, it will bug you enough to where you will do whatever it takes to get your goal met so you just don't have to look at the words anymore. Does that make sense? A goal is something that you want so badly! and you set your mind into getting it, and when you put a date to your goal or a time frame, as I did above--it makes the goal that much more real because you are making your self accountable to...yes, YOURSELF! And let's face it, being accountable to yourself is hard, because you can easily decide to become side tracked, or you have people come up to you with negative comments such as "you can't do this", but you have to want your goal bad enough to where that won't matter. Just like having Cystic Fibrosis. You have to be accountable to yourself when it comes to doing your medicines. Because let's face it, if you're not accountable to yourself when it comes to your meds, the result isn't just-"oh i missed my goal", the result becomes, "oh man-I'M SICK". 
I hope this post makes sense, and I apologize for rambling, I just wanted to stress the importance of goals. Write soon. 
~God Bless

Friday, May 25, 2012

Officially Done!

With High School that is, yes yesterday(Thursday) I finished my senior year. Now for those of you who don't know, I went to public school from Kindergarten-October of my Freshman year. Then our public school had a huge H1N1 outbreak, so my doctors wanted me to stay out for a while, so in that time, I made the big decision, to leave my class and become homeschooled.  Now that means that i was going to give up some of my most treasured things, Pep Band, Jazz Band, Concert Band, and Marching Band. I guess you could say I was sort of a "band geek". I played the Bari Saxophone. I LOVED it. But with becoming homeschooled that meant that I could no longer do that. It was a touch choice, but I decided to become homeschooled. So, i chose an online school, and in January 2010, I became officially homeschooled. And today I can say it was the best.choice.ever. It has been a lot easier with my health. When I get sick i don't have to worry about missing school, it was great. Then I made a goal  back in January of 2010, to be done with school by May 2012. I wrote it on my bathroom mirror. I should have taken a picture, I hope the dry erase marker comes off :) but i never took it off, even though there were many times when I doubted myself I could do it, I never erased it, and last week as i winding down my classes, as I was brushing my teeth I noticed in the corner of my mirror it still said in red letters May 2012.  Let's just say it was incredible. Now in April I made a goal of finishing school by June 1st 2012, but when i saw that I new i had to finish by May, it was my original goal. I learned that if you set a goal, you MUST put your mind to it, and hit your goal, because let me tell you, its the best feeling ever knowing you hit your goal.
Now, I should also add, that if i was in public school, I wouldn't be graduating until 2013, and the class w/my friends that I'd be in today, don't finish school until June 7th. So I am very proud with myself and I don't think there's anything wrong with saying that. Were there times I missed my friends, of course, BUT, that just means that we made time to get with each other. I still do stuff with my friends, text them etc...we haven't lost touch, yes some friendships were lost, but through this crazy thing called LIFE, many new friendships were made. And today I am proud to say, I made the BEST decision of my life.
Now, I also need to add that i haven't added pictures to my blog in FOREVER!! and I also apologize for how my blog looks, I'm going to try to fix it and make it look 'pretty' again :). So here are just a few pictures, and yes, they are very random. Enjoy!
~God Bless


                                                                  This was Bo & I a few days ago :)

                                        On Monday, My grandpa celebrated his 89th birthday!!!

                                          As long as I have this little man, my life's complete.

                                               Yup, this how he sleeps.
                                            Yes, me doing my nightly meds :)





Sunday, May 20, 2012

Great News

First off I apologize immensely for my horrible lack of blogging. Next I want to thank everyone who helped me meet my fundraising goal for the CF Walk A Thon we had yesterday. I made my goal and then some, and our walk which is pretty small compared to most had a goal to raise $7,000. Well we came in at $8,850+. Incredible. So proud. Also another announcement...in a little less than 2 weeks I will officially be DONE with my senior year of high school. This is a huge deal because I will be finishing a whole year and a bunch of days sooner than I would be if I was still in public school. So while my friends start school in September, I, at 17 years old, will not be. We have a busy year ahead o us. In June I have my senior pictures taken. Wait to get my diploma in the mail and I think I also get a cap and tassel. Then I'll hve a grad party. Then my oldest sisters getting married in December so we have wedding planning to do, and also I have my CF annual studies in July. So we have a busy summer but I am gonna live it up and have a great school free summer and just ENJOY and live life, and hopefully maybe plan a girls weekend in Illinois by my aunt and do garage saling and shopping. Well talk soon and will try to update as soon as I can. ~God Bless

Tuesday, May 15, 2012

...Hello

Hello, well this is not the big update I promised, but I am going to try to have that done by the weekend. I've been busy trying to finish my senior year of high school. I will be done by the first week in June, which will be a whole year sooner than if I was still in public school. I am so excited. In the big update i'll talk about what i'm currently doing(school), my plans after, etc... I just wanted to say hello, and i am great, i'm currently on my 28 days of Tobi, and wow what a difference it makes. I was feeling good when I went on, but not now that i'm on i'm feeling great :)

Lastly, My local CF walk is on Saturday at a park close to my house. I am still looking for donations, I am only $80 away from my personal goal. I apologize if it seems like all i'm doing is asking for money but i'm really not. What I'm doing is asking to see if you would be interested in donating money to help me and all the other CFers out there to find a cure for Cystic Fibrosis. The money donated does NOT go to waste. It goes to the Cystic Fibrosis Foundation (CFF) to help with research to find a cure for CF. The CFF is a non-government funded program, and they need OUR help to raise money so we can continue to advance in research. It is because of all of us raising money that they've come out with such great medicines. So if you would be so kind to help me hit my fundraising goal for my CF walk please visit my fundraising site:http://www.cff.org/Great_Strides/PaigeSchreiber6672 It would mean so much to me and all the other CFers out there. Help us to create more tomorrows everydayI do want to say 'Thank You' to all of you have donated so far. I greatly appreciate it as do all the other CFers. 


Well, have a good night and talk to you all soon!! 
~God Bless

Monday, May 7, 2012

I will....

GET BETTER AT BLOGGING. I promise!! I am planning a blogpost update and am hoping to do it in the next day or so. I am currently writing this blog post while on VEST on my iPhone(technology is wonderful). I have some cool things to share coming up I just wanted to say hi and I am still here an I WILL post soon. PROMISE!! Well I'm off to finish my last class of my senior year of school. Yes my senior year. I'll talk about that also. Only 73 assignments left. I'll be done by June. Stay tuned for the update. Love you all. ~God Bless

Tuesday, April 24, 2012

Make~A~Wish Fundraiser

So as you probably remember from my previous post, I talked about being involved in a Make~A~Wish Fundraiser.  Well it was great. Lots of people, many many door prizes, raffles etc...lots of money donated to Make~A~Wish. It was a great success. So I wanted to share a link with you all and when you click the link it will take you to my photo album of pictures from the event. I hope you enjoy the photos.Make~A~Wish Fundraiser Pictures

My local CF walk is on May 19th at a park close to my house. I am still looking for donations, I apologize if it seems like all i'm doing is asking for money but i'm really now. What I'm doing is asking to see if you would be interested in donating money to help me and all the other CFers out there to find a cure for Cystic Fibrosis. The money donated does NOT go to waste. It goes to the Cystic Fibrosis Foundation (CFF) to help with research to find a cure for CF. The CFF is a non-government funded program, and they need OUR help to raise money so we can continue to advance in research. It is because of all of us raising money that they've come out with such great medicines. So if you would be so kind to help me hit my fundraising goal for my CF walk please visit my fundraising site: http://www.cff.org/Great_Strides/PaigeSchreiber6672 It would mean so much to me and all the other CFers out there. Help us to create more tomorrows everyday. I do want to say 'Thank You' to all of you have donated so far. I greatly appreciate it as do all the other CFers.
Well I should get to bed, and get ready for tomorrow.


**Also, I am having some issues with my blog, i'm trying to do a little "spring cleaning" so if things look a little funny, bear with me, and I hope to have it fixed a.s.a.p. Thanks** 


~God Bless

Saturday, April 21, 2012

Update!


So, I didn't post the update last night, but I am tonight :)  There's quite a bit to update on, now that I sit down in "blogging mode".  First, on Thursday (4/19) I had a Dr. appt. Things were great. I redid the aerosol scan from when I was in the hospital to see if the blockage was still in my lungs. It is still in my lungs...but not as bad. The doctor said she's not worried at all because my PFT's were 95% :) and were the last time to. She said she is not concerned because of how healthy I am.  I thank God everyday for my health and how healthy I am.

Next, tomorrow (4/22) I am speaking at a Make~A~Wish fundraiser. I have to admit, I'm not sure what to say and that may shock those of you who know me because you know how much I love talking haha. So we'll see how it goes. I usually don't get nervous so i'm hoping it stays that way.

Oh, I almost forgot...I have wheels again, yes my dad fixed my car yay :) it makes me so happy.

Also, this chica only has...2 classes left and i'm DONE with highschool. Yes, i'm very very excited, as you may or may not know i'm homeschooled, and I should WILL be done by June :) which is a whole year sooner than I would have finished if I was still in public school. So my plan after is to take some time off, Join the gym to get in shape because exercise is VERY important and key* to staying healthy when you have CF, and then go into business with my parents. Overall I can say my life is going pretty well.

Lastly...Walk~A~Thon time. My local CF walk is on May 19th at a park close to my house. I am still looking for donations, I apologize if  it seems like all i'm doing is asking for money but i'm really now. What I'm doing is asking to see if you would be interested in donating money to help me and all the other CFers out there to find a cure for Cystic Fibrosis. The money donated does NOT go to waste. It goes to the Cystic Fibrosis Foundation (CFF) to help with research to find a cure for CF. The CFF is a non-government funded program, and they need OUR help to raise money so we can continue to advance in research. It is because of all of us raising money that they've come out with such great medicines. So if you would be so kind to help me hit my fundraising goal for my CF walk please visit my fundraising site: http://www.cff.org/Great_Strides/PaigeSchreiber6672  It would mean so much to me and all the other CFers out there. Help us to create more tomorrows everyday. I do want to say 'Thank You' to all of you have donated so far. I greatly appreciate it as do all the other CFers. 
Well I should get to bed, and get ready for tomorrow. 


~God Bless

Friday, April 20, 2012

Stay tuned

I apologize for being soo bad at blogging. I keep meaning to do an update. I will be doing a big blogpost later tonight so stay tuned. Im going to update you all on how my doctor appt. went yesterday and the Make~A~Wish fundraiser im speaking at and also the CF walk. Love you all stay tuned. ~God Bless

Wednesday, April 11, 2012

Back to blogging

Well, I know I've been missing from blogging lately. I am going to be trying to get back in the groove of blogging. I've been pretty busy with finishing school, and trying to raise money for my CF walk coming up in May. I have postponed it waaaay to long and I have to get my butt in gear. I apologize if this blog seems like all i'm doing is asking for money but i'm really now. What I'm doing is asking to see if you would be interested in donating money to help me and all the other CFers out there to find a cure for Cystic Fibrosis. The money donated does NOT go to waste. It goes to the Cystic Fibrosis Foundation (CFF) to help with research to find a cure for CF. The CFF is a non-government funded program, and they need OUR help to raise money so we can continue to advance in research. It is because of all of us raising money that they've come out with such great medicines. So if you would be so kind to help me hit my fundraising goal for my CF walk please visit my fundraising site: http://www.cff.org/Great_Strides/PaigeSchreiber6672  It would mean so much to me and all the other CFers out there. Help us to create more tomorrows everyday.

Lastly, there is a Make~A~Wish event in our area later this month and I was wondering if anyone would be interested in participating? I will be there, and I think i'll be sharing a few words about my wish experiment, so if you're interested here are the details:


Thanks everyone. ~God Bless

Monday, April 2, 2012

Random Blog--Update

Wow, have I been slacking--Big Time! So I guess I will do an update since i haven't in almost a month. Well:
*I finally joined Twitter :) Follow me @PaigeCF94
*I got my preordered Rascal Flatts Delux CD "Changed" and a poster today--yes it made my day :)
*I am still feeling great.
*I can't wait to go back to Arizona, I loved it :)
*I go back to CF clinic in 17 days. They are going to redo the arisol scan to make sure the IV meds got the blockages out of my lungs. Then I will have PFT's and see the doctor.
*I am anxiously waiting to do my senior pictures &
*as of today I officially have 3--yes 3 classes to finish up and I am DONE! with school :) which will be a whole year earlier than if I was still in public school. I should be done by June :) yes i'm stoked if you can't tell.
*We are going to Ohio this month for a few days for my parents business confrence,
*We had easter yesterday with my moms side of the family. I made Margarita cake--delish, and banana split cake--dairy free(my moms lactose intolorent) everyone likes it, don't worry-i make sure there's whip cream on the side for everyone.
*Lastly, this blog is totally random, if you can't tell. I hope everyone's doing well, and remember:
It's also 2 months till my local CF walk-a-thon, so if you're interested in helping me meet my goal this year, and helping create more tomorrows here's my personal CF donation page: http://www.cff.org/Great_Strides/PaigeSchreiber6672

~God Bless

Friday, March 16, 2012

New News

So a few days ago we got my transcripts from when I was in the hospital that gave an overview of everything, like what meds I was on, why I was admitted etc...and as we were reading it we came to a part that said "Paige's mutations" and it said "Delta F508 & G542X." That confused us all, because for as long as we can remember we had thought I was a Double Delta F508. So we went back in my baby book and got out the sheet from when I got tested for my mutations to see what they were, and sure enough when I was tested over 14 years ago, my genes are Delta F508 & G542X. So this could sort of change things, and sort of can't. The ups: I still have the Delta F508, so when a drug comes out targeting that gene I can probably get it :), another up is that the gene G542X, i don't believe is as "harsh" as the Delta F508, which sounds bad, but it is a good thing. It changes things a little, but i'm not worried, as long as I do my treatments & EXCERSISE this summer, I know my lung function will stay high. The only way my lung function will decrease is NOT because "CF is progressing" it will be because I become a slacker, which I WILL NOT become. I am going to live a VERY long, HAPPY, HEALTHY life, and get married and have kids, and become a grandmother with gray hair. We only get one life and i'm gonna LIVE IT!!!

It's also 2 months till my local CF walk-a-thon, so if you're interested in helping me meet my goal this year, and helping create more tomorrows here's my personal CF donation page: http://www.cff.org/Great_Strides/PaigeSchreiber6672 , have a great weekend :) ~God Bless

Wednesday, March 14, 2012

MIA & CF Walk~A~Thon

So as you've all probably seen i've been a little mia. Well we went to visit our friends in Arizona for a few days. We had a BLAST I've never had so much fun. My perceptions of Arizona were waaaay different. I can't wait to go back. I also got to meet fellow CFer Ronnie Sharpe from www.runsickboyrun.com you should definetly visit his website. Here's a link to visit my pictures that I posted to my Facebook account http://www.facebook.com/media/set/?set=a.3169963059464.2137026.1577120958&type=3&l=8ea177a8c8 Enjoy :)

ALSO: the following i'm going to keep posting for CF awarness and for Walk-A-Thon info & Donations:

As, you probably remember from previous posts from when I was in the hospital, when I got my PICC line put in I was going to be the PICC line model, for teaching purposes to help other kids when they get one to teach them about it. It was through Child Family Life. They had a photographer, Jim, come in and he was great. He took TONS of photos, and he was nice enough to make me my own copy with some of the pictures. Well, I decided to raise awarness for Cystic Fibrosis, to make a video of the pictures. I promise there is only 2 pictures with blood. Nothing to bad. So here is the link to watch it: http://www.youtube.com/watch?v=xOXUVqvmzYQ I hope you enjoy it. Feel free to share it with anybody to help create awarness for Cystic Fibrosis, and since the Cystic Fibrosis walk is coming up, you can also feel free to visit my CF walk a thon page: http://www.cff.org/Great_Strides/PaigeSchreiber6672 Any donations are appreciated to help raise money to cure Cystic Fibrosis. CFers have an unusual bond together, CF makes us stronger, and no matter what obstacles we are faced with, in the end we just learn to....STAND! ~God Bless

Thursday, February 23, 2012

PICC Movie-CF awarness

So as some of you probably remember from previous posts from when I was in the hospital, when I got my PICC line put in I was going to be the PICC line model, for teaching purposes to help other kids when they get one to teach them about it. It was through Child Family Life. They had a photographer, Jim, come in and he was great. He took TONS of photos, and he was nice enough to make me my own copy with some of the pictures. Well, I decided to raise awarness for Cystic Fibrosis, to make a video of the pictures. I promise there is only 2 pictures with blood. Nothing to bad. So here is the link to watch it: http://www.youtube.com/watch?v=xOXUVqvmzYQ I hope you enjoy it. Feel free to share it with anybody to help create awarness for Cystic Fibrosis, and since the Cystic Fibrosis walk is coming up, you can also feel free to visit my CF walk a thon page: http://www.cff.org/Great_Strides/PaigeSchreiber6672 Any donations are appreciated to help raise money to cure Cystic Fibrosis. CFers have an unusual bond together, CF makes us stronger, and no matter what obstacles we are faced with, in the end we just learn to....STAND! ~God Bless

Monday, February 20, 2012

Picture Post

Okay so I haven't posted many pictures in a while, so I wanted to catch you up to speed with some pictures from the last few weeks & from when I was in the hospital. Enjoy :)


This was the view from my hospital room.



IV #1(gotten on a Tuesday)




IV #2(gotten on a Wednesday)






PICC line(gotten on a Friday)--see previous posts for PICC story.


My lovely bruise from my PICC line--it doesn't hurt :)



My friend "pole" which keeps me very non-mobile. It's the first time ever that i've actually had to have an iv pole for home iv meds.


I got my hair done on Friday. It's hard to tell in the above picture, but it's a brown/mocha color in the front and the back is copper :) I call it "serious in the front, party in the back"


Here you can sort-of tell the difference.

this is a HORRIBLE picture, but you can actually tell what the different colors are :)

**Have a great day, talk soon. ~God Bless

Friday, February 17, 2012

It's not being brave...It's part of having CF

So i wanted to do a small post about bravery. When i got my PICC line last Friday, i have to admitt it was an expierence i've never had before. I will admitt i was a little scared at first when they had to go to my other arm to do the PICC because of to much scar tissue. I knew that that arm had to much scar tissue, but i had faith. I had faith that it would work...even though i knew it probably wouldnt and was i shocked, mad, dissapointed? Of course!! But i didnt show it. I think thats where the bravery part comes in. When you have an illness or medical illness, in my case CF, you tend to not show your emotions right away. You tend to put on your "brave" face and "go with the flow" as some call it. Some people say i had patience that day, and that i was so brave, and went with the flow. But truth is i was scared. Reality started to hit while i was lying on the table with both my arms out while they had to call the Dr in, reality was/is that CF does really affect you. Why that hit me then i will NEVER know. BUT, all i kept thinking was, this is part of CF, this is MY life, MY reality. Is it hard? ABSOLUTELY. What part of CF isnt? Is it scary? SOMETIMES. And do you have to be brave sometimes even when you dont want to? ALWAYS. BUT, will i ever regret God blessing me with CF? NEVER!!!! I am choosing to live my life, smile when sometimes id like to cry, and be BRAVE even if i dont feel like it because its not about being brave, its just part of having CF

Monday, February 13, 2012

Day 28-30 & Health Update

Well first i'll do a health update. On Friday I got my PICC line as planned---but it didn't go as planned. I was the "PICC" model. But let me tell the story of how a PICC placements that supposed to only last 30-60 minutes TOPS ended up taking 2 1/2 hours. Lets just say this chica wasn't to happy. First they wanted to try my right arm since they couldn't find a vein in my left, but it didn't work. To much scar tissue. They even had to call the dr. in and he said he could probably get it in in my right arm but i would have a huge risk for blood clots, and he wanted to try my left arm but it was my choice. Of course i don't want blood clots so I chose my left arm. He was able to find a deep vein and it worked. He had to put in a smaller sized PICC line. but basically he said my veins are tired. They've worked very hard. So he said next time I need a PICC line I could but it'd be best to do it under sedation, but in the future to start thinking about a Port. Anyway's that's how the whole thing took 2 1/2 hours. So now i'm home on Levaquin & Doxicyclin IV meds, 2 added inhaled meds, upped my one med to 40mg instead of 20, and added Bactrum for another 10 days. So my days as you could say is pretty busy. And doing VEST 3x a day. they said 4 but I can fit 3x forsure.

Next the end of my 30 day challenge. Day 28 is-in the past month what you learned? Well what I learned was that your health is never promised. You can go from being healthy one day and sick the next and a week later in the hospital. Of course i knew that but it was just a refresher :)
Day 29 is-Something you could never get tired of doing? Something I could never get tired of doing is TRAVELING. I absolutely LOVE traveling. Ive been to many places and can't wait to go to many many more--with my baby :)
and Day 30 is-A photo of myself plus 3 good things that have happened within the last 30 days. 3 good things that have happened in the last 30 days are 1) Got to see my friends from out of town :) 2) was asked to be a PICC "model" i know it's weird, but i thought it was cool 3) met some awesome people in the hospital.

Well i just finished my 2 nightly IV's and it's time for me to take a shower, do my VEST, and hit the hay. Love you all thanks for all the thoughts and prayers. ~God Bless

Thursday, February 9, 2012

Hospital update & Day 27

Day 27 is what kind of person attracts you? Well the type of person that attracts me is someone who is of course; nice, and loves to help people, and likes to make a difference, someones whos confindent, and knows "why they believe what they believe". That is what kind of person attracts me.
Hospital Update: Well today made day 2 1/2 today. I came in Tuesday night, got my IV and started 2 very hard-core meds. Doxicyclin & Levaquin. Well because they are so strong, it was messing with my iv, so i had to get another one last night. So tomorrow (Friday) I am getting a PICC line, and then I should be able to come home Saturday on home IV's for 2 weeks-give or take. So that is the game plan :) Yesterday i had what they call an arisol x-ray scan which is where i breathe in and out something that has oxygen and some kind of radiation type thing(the whole scan supposidly had less radiation than an x-ray), anyways the scan as I breathed in and out showed where all the air went in my lungs, and the purpose of that scan is to see if i have any blockages in my lungs. I keep saying I have pain in my right lower lobe, and my upper left lobe and its not that they don't believe me, but they have a hard time treating it because they can't see if on an x-ray and they can't hear it when they listen to me, so this scan was supposed to see if there was any blockages. Well there were two little blockages-guess where? yup a small spot on my LOWER right lobe, and a little bigger one on my UPPER left lobe. So now they know the correct way to treat me :) So that's whats new and the game plan, after 2 weeks they want to redo the scan to see if the blockages are gone, and if not then we'll go from there.
OH, also, when i get my PICC line i'm going to be a model. During my PICC line placement they are going to take pictures of the whole process start to finish, and then when they have to explain the procedure to people/kids they will use my pictures to explain the procedure. A photographer comes in and everything. I'm kinda excited about it. Well i better go, I have a VEST at 5:00, IV meds at 6 or 7 or 8. Have a good night. Love you all. thanks so much for all the thoughts and prayers. ~God Bless

Day 25 & 26--Hospital Update later

So yesterday was day 25 and today is day 26. I will do a hospital update later. Anyways, day 25 was your top 5 favorite books/movies. My top favorite movies are:
1) Ladder 49
2) Hairspray
3) A Walk to Remember
4) Sweet Home Alabama
5) Miracle
and for the record i love ANY John Travolta movie :-) Next is my top favorite books are:
1) Hope was Here
2) Do You Think I'm Beautiful
3) Grown up Girlfriends
4) 7 Habbits of Highly Effective People
5) To Kill A Mockingbird
Day 26 is a photo of a place you want to go. I don't have a picture on my phone but i've been to Bora Bora and definetly want to go back soon but I do want to go to the BVI (British Virgin Islands).
Well i will do a health update later. Love you all. ~God Bless

Tuesday, February 7, 2012

Day 24 & Hospital

Day 24 is something that means a lot to me and o course that would of course be my baby Bo :) I dont have a picture because im posting this from phone so you'll have to look back at Day 21 or i'll try to post a picture of him. Also i want to give a health update. I am currently in the hospital. Ive gone 8 months without being admitted so im not to dissapointed. I was expecting it. Theg are talking no PICC line so it should be a short stay. I always say i have expensive taste and like nice things and i love going on vacations, why not go somewhere expensive that has room service ;) haha. Well i shoild get to bed i will keep you all posted. Thanks for all the prayers and get well messages. It truely means a lot. Love you all. ~God Bless

Monday, February 6, 2012

Day 23

Day 23 is 15 facts about me:

1) I am a Christian
2) I am 17
3) I have Cystic Fibrosis (of course)
4) I have a mini Yorkie named Beauregard(Bo) and he is my Baby.
5) I have been to Bora Bora
6) I love to travel
7) I have a big love for food
8) I am homeschooled
9) I have 2 older sisters
10) I love the Cosby Show (even though we don't have T.V.)
11) I just got an iphone and L.O.V.E. it
12) I am naturally a brunette-but color my hair
13) I love shopping
14) I believe God put me on this earth for the reason of helping people and making a difference in the world and i'm not going to let him down. I believe he has big plans for me.
15) I live life by the motto, "life's not the breaths we take, but the moments that take our breath away"

~God Bless

Sunday, February 5, 2012

Day 22 & Health Update

Day 22-I didn't like the topic of day 22 so I'm going to skip it, but instead give an update on things in my world and my health. First, I want to say that on Friday(Feb 3) I FINALLY got my iphone 4s after waiting since May. I got the White Iphone 4s---and let's just say it's the most amazing phone ever! On Saturday(Feb 4) i spent the day with my mom and two sisters, we haven't done that in a while and it was one of the best days ever. I miss that we must do it again Soon!! Now onto my health. Well remember how a couple of weeks ago I had a great doctors appointment and my FEV1(breathing test) i blew a 97%, well as I write this, i'm writing it on vest with very tight, hurting lungs, taking 3 antibiotics, and planning my "future" hospital stay-Let me explain. I haven't been feeling good for a while(lungs) and have been putting it off because we've had plans that i didn't want to miss so i haven't told anybody-not smart i know. So I do tobi every other 28 days. I am currently on it. I take Azythromicin 3 days a week.
Well I started not feeling good at all. Wore out, tired, & yes the cough. I haven't been sleeping-laying awake till 5 a.m. is no fun at.all. So mom called the dr. and they sent in for perscription Bactrum. I've been on it now 4 days and still no difference at.all. So mom's going to call tomorrow and see what plan B is. I don't want to expierment with anymore meds. I am anticipating a hospital stay this week. I know sad right? But it's okay because I know that it's the easiest way for me to get better, and IV meds work amazing. So that's what is going on in my world of health updates. I will keep you all posted on what is decided, but don't be surprised if one of my next posts is from Hotel U of M Amplatz Childrens Hospital :) I mean hey i like nice "expensive" vacations, why not just make it to a hospital--hey they have room service :) haha. Have a good day! ~God Bless

Saturday, February 4, 2012

Day 21

Day 21-A photo of something that makes me happy. Well lots of things make me happy-but one thing that never fails to "not" make me happy is my baby-Bo. My dog :) He cam make me happy even if i'm upset at him for not listening, or if i'm in a bad mood, or having a crummy day...my baby's with me all.the.time. I love him SO much :)

Friday, February 3, 2012

Day 20

Day 20 is the meaning behind my blog name. The meaning behind my blog name "The Joys of having CF" is a very simple meaning. I believe that God gave me this illness for a reason because he new I could handle it and he new i was strong enough, and I consider it an honor, and the people i've got to meet from having CF, the things i've gotten to do, the stories i've read about people with CF, I condier it a "Joy" of having CF. Hence the name "The Joys of having CF".

~God Bless

Thursday, February 2, 2012

Day 19

Day 19 is your reflection in the mirror.


this picture is from last year at my Make-A-Wish going away party. :) Have a super day. ~God Bless

Wednesday, February 1, 2012

Day 18

Day 18 is 5 things that irritate me. Well not to much irritates me, but here's my list:
1) People acting like they are "big shots"
2) Clinking forks on plates(it sends the chills through me)
3) People who make a big deal out of something so small or nothing
4) Interupting
5) When doctors "expierment" with different meds when your sick :)

Those are 5 things that irritate me. Nothing major. Have a super day :) ~God bless

Day 17

Day 17 is how I hope my future will turn out. This is a topic I think about all.the.time. I dream of my future so much. I have such big dreams.
I hope my future is a great one. I hope I can love, respect, serve & honor my God with all my heart and make him proud of me I play on getting married one day to a loving man that loves me for who I am and accepts my illness. I hope to have 1-2 kids. Live in a nice house, have a nice car, and have Freedom. No money issues, and be a stay at home mom. Live a very very long happy "healthy" life, and do all i can to try to help find a cure for CF. I hope to help as many people as I can and live a life of excellence.
That is how I KNOW my future will be.
Have a great day. Love you all. ~God Bless

Tuesday, January 31, 2012

Day 16

Day 16 is a passion I have. I have many passions in life, but my main ones are:
-helping & making a difference in peoples lives.
-living a life of excellence.
-living each day as if it were my last.
Those are the passions I have in life. I believe that God put me on this earth for a reason and i'm not going to let him down, I am going to help as many people as I can and make a difference in as many peoples lives, and I am going to live a life of excellence and live each day as if it were my last.
Those are my passions in life :) God Bless.

Monday, January 30, 2012

Day 15

Day 15-something i don't leave the house without. That's very easy. My Enzymes, purse, and phone. Simple as that :) I always have enzymes in my purse-oops guess i should have mentioned that in "whats in your make up bag/purse", oh well you'll see it now :) Those are basically the only things i don't leave the house without. I like leaving with money to, but that doesn't always work out haha.

Have a super day. ~God Bless

Sunday, January 29, 2012

Day 14

Day 14-TV show(s) your currently addicted to. Well we don't have TV. When it went digital a few years ago we decided not to upgrade. People think its a bad thing to not have tv, well we LOVE it. We read more books, watch movies, and use the computer. Other than that it hasn't killed us not having tv, so why get it back now :) But, I do like a few older shows that i watch at my grandmas but plan to purchase sometime:
1) The Cosby Show-my all time favorite
2) Reba-love it
3) Home Improvement-hilarious
4) The Nanny-need I say more
Those are basically the only shows i really care to watch.


Well have a great day. Love you all ~God Bless

Saturday, January 28, 2012

Day 13

Day 13-a few of your favorite quotes, mottos, or versus. Wow okay so I have wayyy to many to post, but if you look on my blog i have a quote right under the picture and a saying right under my "about me". If you're friends with me on facebook you know i like to post lots of quotes. It's my favorite thing to do. Lately I like, "i ain't as good as i'm gonna get, but i'm better than i used to be", "never let your praying knees get lazy, and love like crazy", "i ain't here for a long time, but i'm here for a good time", "life's not the breathes you take, but the moments that take your breathe away", "never let the fear of striking out, keep you from playing the game", "live each day as if it were your last because tomorrows never promised", "when one door opens to another door closed, i hope you keep on walkin' till you find the window", "two roads diverged into a yellow wood, and I, i took the road less traveled and that made all the difference", "YOU LIVE FOR THE FIGHT WHEN THATS' ALL THAT YOU'VE GOT".

Those are just SOME of the MANY MANY quotes i love.i hope you enjoy. have a great day. ~God Bless

Friday, January 27, 2012

Day 12

Day 12-your current relationship status? I am single. Don't judge :) i'm only 17! :)

That was easy haha.

Have a super day. Love you all. ~God Bless

Thursday, January 26, 2012

Day 11

Day 11 is what's in your purse/make up bag. Well i don't have a make up bag since i'm not to fond of make up, but i do have a purse, and all that's in it is my wallet, car keys, and my phone(occasionally). That's it. Kinda simple. But I do love purses :)

Talk soon. Love you all. ~God Bless

Wednesday, January 25, 2012

Day 10

So day 1o of the blogging challenge is a photo of your favorite place to eat. Well I don't have a photo but i'll tell you my favorite place(s) to eat. I LOVE food, for anyone that knows me. I love me a good meal of meat and potatoes, pizza, but I especially love me a good meal of PASTA. Yes, I jokingly say I should be italian. I love pasta so much.
So my favorite place to eat is Olive Garden. Now it's hard to choose but it's the first one that comes to mind.

Have a good day. Love you all. ~God Bless

Tuesday, January 24, 2012

Day 9

So Day 9 of the blogger Challange is-A photo of the last item you purchased. Well Saturday I purchased these wonderful pair of-yes Shoes! haha. This is a picture of my red high heels. I love them, and got a super deal on them. I am a total sale shopper, so when I see a pair of $50 shoes on sale for $10 it's kinda hard to pass up. So here is a photo of the last item i purchased :)

I hope you all have a good day. God Bless. Love you!

Monday, January 23, 2012

Day 8

Blogging challenge Day 8-A song to match your mood. Well I have MANY favorite songs, but a few songs that match my mood and hit so close to my heart have to be:
1) Rascal Flatts-I won't let go
2) Kid Rock-Born Free
3) Jason Aldean-Tatoos on this town
4) Blake Shelton-God Gave me you
5) Bon Jovi-It's my life
6) Michael Jackson-Man in the Mirror

There are MANY MANY more-lots of Rascal Flatts songs but these are in my "top list" of songs that match my mood-most every day.

Have a good night! Love you all ~God Bless

Amazing Statement

This was posted by one of my facebook friends and I thought it was just so amazing. It almost brought me to tears because it's so true. Enjoy:

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted."

Sunday, January 22, 2012

CF appt. Update & Day 4-7

Okay so first i'll update you all on my doctor's appt. I had on Wednesday. BEST.APPOINTMENT.EVER! When I did PFT's I blew a 97%. I have NEVER blown a 97% in my whole life. I am the healthiest i've ever been in my whole life and I am so thankful and I thank God every single day for the health he's blessed me with. As one of my friends said to me "God was talking to my lungs that day". I agree 100%.

Okay so next, As many of you know i'm doing a little 30 day blogging challenge, well i missed days 4-7 bad I know but since day 4-6 sort of went together i'm really not that far behind ;)

A picture of me and My best friend, talk about my pets, and a animal i'd like to keep as a pet. So the answer is the same for all of them. My dog Beauregard(Bo).
Bo is my mini Yorkie. He will be 3 years old in June, and I will have him a total of 3 years in October. How time flies is insane. He is totally my best friend, and my baby. His real name is Beauregard(only said when he's in trouble) but we call him many things, Bo, BoBo, Little Man(his favorite), Bear Bear, & Prince Bo. Can you tell he's my baby? He's my "main man" as I tell everyone haha. He has dog clothes, a carseat for the car(yes he has a carseat-don't judge) hehe, he loves toys, and he is a dog of many different colors & hairstyles. He is truely is my best friend. So here are a couple pictures of me and my "main man".


This is a picture of Bo the 2nd day I got him.


Bo in the car :)
My baby & me-yes we're matching :)
So lastly Day 7 was what is your dream wedding, well i'm only 17 but my dream wedding is a beach wedding, a classy, ellegant, fun wedding.


So i'm going to try to update more this week. Love you all. ~God Bless.

Wednesday, January 18, 2012

30 Days of blogging: Day 3

So as many of you know I have been doing this the last few days and i've been doing pretty good at keeping up with doing all 3 days so far :) So before I get to what Day 3 is, I just wanted to give you all an update on my health. Tomorrow I go to my CF dr. I have been out of the hospital for a total of 8 months!!!!! Crazy! I'm hoping for a total year w/no Iv's...do you think i can make it? Anyways so i go tomorrow and will update everyone on how my appointment goes.

Okay so now onto the Day 3 of blogging. Day 3 is your idea of your perfect first date. So i've never been on a first date before, heck i've never been on a date before haha but hey i'm only 17 ;) but I think a perfect first date would just maybe be going to dinner or something like that. I don't know.

So that is Day 3. If you want to join, just look at my posts from Day 1 & 2 and it has the catagories and such. Have a good night. Love you all. ~God Bless

Tuesday, January 17, 2012

30 Days of blogging: Day 2

My fellow blogging friend Jenny from Life as a Livingston had this on her blog and I thought i'd take the opportunity to also do it.
Now, I have to be honest and tell you up front that I'm not going to follow through with this EVERY day, but I'll definitely be more inclined to post something if I have an outline to follow. The less thinking involved on my part, the better!I'm posting the list here, in case any of you want to join. You can jump in at any point; the posts don't have to coincide with the day of the month or anything like that.
I am doing this to maybe help you get to know me a little more :)

Day 1 - Your Favorite Song
Day 2 - Your Favorite Movie
Day 3 - Your idea of the perfect first date
Day 4 - Your favorite photogaph of your best friend(s)
Day 5 - Talk about your pets
Day 6 - A photo of an animal you'd love to keep as a pet
Day 7 - Your dream wedding
Day 8 - A song to match your mood
Day 9 - A photo of the item you last purchased
Day 10 - A photo of your favorite place to eat
Day 11 - What's in your make-up bag/purse
Day 12 - Your current relationship status
Day 13 - A few of your favorite quotes, mottos, or versus
Day 14 - TV show (or shows) you're currently addicted to
Day 15 - Something you don't leave the house without
Day 16 - Describe a passion you have
Day 17 - How you hope your future will be like
Day 18 - Five things that irritate you
Day 19 - Your reflection in the mirror
Day 20 - The meaning behind your blog name
Day 21 - A photo of something that makes you happy
Day 22 - A letter to someone who has hurt or OR made you happy recently
Day 23 - 15 Facts about you
Day 24 - A photo of something that means a lot to you
Day 25 - 5 of your favorite movies/books
Day 26 - A photo of somewhere you want to go
Day 27 - What kind of person attracts you?
Day 28 - In this past month, what have you learned?
Day 29 - Something you could never get tired of doing
Day 30 - A photo of yourself plus 3 good things that have happened within the last 30 days

So here we go: Day 2 my favorite movie. Well as most of you know I am obsessed with John Travolta. I love all of the movies he's in and everytime one of his movies is on i just have to watch it. I love many many movies, like "A Walk to Remember", Christmas Movies, Musicals, etc...but my ultimate favorite movie has to be "Ladder 49" with John Travolta. I not only like this movie because he's in it but it has such a true meaning in it, and it is such a motivating movie. I love it. I highly suggest you watch it sometime-but be sure to have kleenex.


Monday, January 16, 2012

30 Days of blogging: Day 1

My fellow blogging friend Jenny from Life as a Livingston had this on her blog and I thought i'd take the opportunity to also do it.


Now, I have to be honest and tell you up front that I'm not going to follow through with this EVERY day, but I'll definitely be more inclined to post something if I have an outline to follow. The less thinking involved on my part, the better!

I'm posting the list here, in case any of you want to join. You can jump in at any point; the posts don't have to coincide with the day of the month or anything like that.


Day 1 - Your Favorite Song
Day 2 - Your Favorite Movie
Day 3 - Your idea of the perfect first date
Day 4 - Your favorite photograph of your best friend(s)
Day 5 - Talk about your pets
Day 6 - A photo of an animal you'd love to keep as a pet
Day 7 - Your dream wedding
Day 8 - A song to match your mood
Day 9 - A photo of the item you last purchased
Day 10 - A photo of your favorite place to eat
Day 11 - What's in your make-up bag/purse
Day 12 - Your current relationship status
Day 13 - A few of your favorite quotes, mottos, or versus
Day 14 - TV show (or shows) you're currently addicted to
Day 15 - Something you don't leave the house without
Day 16 - Describe a passion you have
Day 17 - How you hope your future will be like
Day 18 - Five things that irritate you
Day 19 - Your reflection in the mirror
Day 20 - The meaning behind your blog name
Day 21 - A photo of something that makes you happy
Day 22 - A letter to someone who has hurt or OR made you happy recently
Day 23 - 15 Facts about you
Day 24 - A photo of something that means a lot to you
Day 25 - 5 of your favorite movies/books
Day 26 - A photo of somewhere you want to go
Day 27 - What kind of person attracts you?
Day 28 - In this past month, what have you learned?
Day 29 - Something you could never get tired of doing
Day 30 - A photo of yourself plus 3 good things that have happened within the last 30 days




SO here we go--my favorite song:


I have way to many favorite songs. As many people know i'm absolutely obsessed with Rascal Flatts. best.music.ever! but my one song that i really love is Kid Rock's song Born Free. I heard it at a funeral for our friends son who died and it really hit home. He was in his early 20's and this song really hit home, especially having to me with having CF. So here is the song I hope you enjoy :)


http://www.youtube.com/watch?v=bu3rsha1ZtI&ob=av2e



Born Free lyrics:


Fast, on a rough road riding

High, through the mountains climbing

twisting, turning further from my home.

Young, like a new moon rising

Fierce, through the rain and lightning

Wandering out into this great unknown.

And I don't want no one to cry.

But, tell 'em if I don't survive



I was born free!

I was born free

I was born free, born free.



Free, like a river raging

Strong as the wind I’m facing.

Chasing dreams and racing father time.

Deep like the grandest canyon,

Wild like an untamed stallion.

If you can’t see my heart you must be blind.


You can knock me down and watch me bleed

But you can’t keep no chains on me.



I was born free!

I was born free

I was born free, born free.



And I'm not good at long goodbyes

But look down deep into my eyes

I was born free.



Calm, facing danger

Lost, like an unknown stranger

Grateful for my time with no regrets



Close to my destination

Tired, frail and aching

Waiting patiently for the sun to set



And when it's done, believe that I

will yell it from that mountain high



I was born free

I was born free

I was born free, born free



I will bow to the shining sea

And celebrate God's grace on thee




Thursday, January 5, 2012

Happy New Years

Happy New Years. I know it's a little late, but I just wanted to wish everybody a happy new years. I hope this year brings much happiness, love, and peace to everyone. I hope everyone has a good and HEALTHY year. I hope that not so many people lose their battle from CF this year. Last year we lost so many precious lives from CF, it is just so sad. They lost their battle way to soon. I pray this year we come closer than EVER to finding a cure, as some of you may or may not know, one of the new CF drugs that shows very positive results in correcting a certain CF gene is now waiting to be approved by the FDA. The CF foundation was able to get "priority approval" which means instead of waiting possibly a year or more to get it approved, it is going to hopefully be approved in April. How exciting. We all have our goals set for our CF walk-a-thons coming up this year. If you are interested in joining our walk let me know, send me an email/fb message, or if you are interested in donating to my walk here is the personal link to my donation site. http://www.cff.org/Great_Strides/PaigeSchreiber6672 If you don't like doing things online, and would like to make a donation, let me know email/fb message and we'll figure it out :) If you are able to I'd really appreciate your help. ANY donations are so helpful. We need to get that cure out! and help make even more tomorrows happen for so many more CFers that are waiting for a cure just like me, then maybe not so many people will have to have Lung Transplants. So please pray, and donate, and have a very wonderful-healthy 2012. Love you all! ~God Bless