5-25...last week I turned 25. I LOVE birthdays. It was such an amazing day. Why? For so many reasons.
If you’ve followed or known me a while you know I was diagnosed with CF at 4 months old.
At 4 months old (born in 1994, diagnosed in 1995) not many knew how to treat CF, lite lone what it was.
At 4 months old my parents were sent to a big University Medical Center(where I currently go today) and they were told that they wanted to admit me; otherwise they may be taking me home one way or another(alive or not alive).
At 4 months old they were told I may see kindergarten-maybe.
Age 5 came. Years of hospital stays. Years of medicines. Years of procedures. Years of advancements.
At age 5 I started kindergarten.
At age 5 I was told maybe I would graduate high school.
Fast forward to 17-I graduated high school.
Statistics are always that one word that kind of “bug” me because who are we to judge someone’s life. Everyone’s different.
But it is also motivation.
After going past milestones or “predictions” you start to not believe in them and instead strive to succeed and see what statistic you can prove wrong.
For the longest time we were told I would probably never see 25.
Well I am here to say that statistic was proven wrong also.
- currently my favorite number. 1/2 way to 50(that is so exciting).
Has all 25 years been easy? Oh goodness no.
Has the last 5 been probably been the most interesting health wise? Absolutely!!
But I have an amazing feeling that the next 25 will be the best.
But-the last month has been the best by far.
The FDA approved a medicine that is as close to a “cure” as it can get, for now.
It makes the last 25 years so worth it. Heck-every.single.day we wake up is a day that is WORTH IT!
It is amazing to see in 25 years how FAR the research has come.
With that being said-the reality of the new medicine? Some of us who do qualify still may not get it. Why? Because it is expensive. This kind of thing isn’t just “free”. At this point we can only pray that insurance companies see how beneficial it is; as do the doctors, & researchers.
My insurance approval is still in process.
I’m going by the motto of “no news is good news”.
Every single night I pray for approval for everyone who can qualify.
So-to end; 5-25...it’s been a journey for the books, but it has been the most AMAZING! journey. This life is so beautiful! I just hope I can truly show my gratitude and thankfulness for everything God has blessed me with in these 25 years and I hope the next 25 are just as good.
Because at the end of the day-it doesn’t matter how crazy the journey is-if I can lay down with a full and grateful heart, take things slower, appreciate the little things, and just love this life I’ve been blessed with-that is what my life goal is.
And when God does decide it is my time to go: all I hope is to hear when I see him is “well done thy good and faithful servant”
~God Bless
