The Joys of having CF

The Joys of having CF

Friday, October 25, 2013

My baby's Anniversary

Today is the 4 year anniversary of when I got my baby. It seems like forever and I have no clue what I'd do without him. He is a great therapy dog, and my best furry friend. I love him so much!! I always say he's my baby! So for his "dog-aversary" I got him a fancy new tag with bling, some dog shampoo, and treats. he's not spoiled at all. Love my Mr. BoBo

~God Bless

Thursday, October 24, 2013

Don't forget to live!

Well today was the big day! My very first appointment with my new doctor in the adult side. To say I wasn't sad to not be at pediatrics anymore, would be lying. I miss my pediatric dr and clinic and staff, BUT rest assured after my appointment today I'm feeling much better. If you follow me on Facebook you probably know I had a great appointment. I started my visit with PFT's and blew.....99% never ever in my life have I blown that number so that was a great start to my day. Then I met with some of the staff like the nurse coordinater, social worker and dietician. Lastly my dr. He is a pretty cool guy. He is a pulmonologist and also a micro biologist(talk about a mouth full). One of the very first things he said to me that impressed me right away that I've never heard before and really put things into perspective was: "you've worked so hard for 18 years to be so healthy so you can live you're life, and I'm going to help you to live and enjoy that life". Basically meaning you've been told to do your meds and treatments so you live a long life, but you also have to remember to be able to enjoy and live that life! So all in all 
I really like my new dr. One last thing he said to me today that made my day was, "I'm not to worried about you health wise, I know you're going to be just fine and have a good future". That's very reassuring coming from a dr. 
And you know he really made me think today. We, CFers, are tought to grow up and do our meds, do our treatments, never miss one and work as hard as you can and do whatever you can to stay healthy so you can live a long life, but somewhere from the time we are told that to the present, we kind of forget to "Live" in a sence. We worry so much about staying healthy and sometimes "living" gets put aside. 
So I just want to end with a reminder: yes we have to do our treatments, yes we must do whatever we can to stay healthy, BUT we can't do all this work and forget to live. So please, go out and LIVE a long and Healthy life! It is possible to do both :) 

~God Bless

Monday, October 21, 2013

Great News

I just found out that the national CF convention was this past weekend and they had some amazing news. The average life span of someone with CF has raised! From 37 years old to now 41 years old. That's incredible! That shows just how much research is advancing, and gives new hope to all of us. What a great start to the week :)

~God Bless

Monday, October 14, 2013


Hey everyone just thought i'd do a quick update. Things are going good. My body and I are preparing for winter. I got my flu shot today(Monday). Next week Thursday I go to the Dr. It will be my first visit with my new doctor at the adult center. I'm kinda excited. I will also be getting a blood test for the study I'm apart of for the next year or so. So I will definetly give you all an update after my dr appt. 
My baby(Bo) is doing good. Next week will be the 4 year anniversary of when I got him. It doesn't seem that long ago. I love him so much. 

Other than that things are good. My grandpa had a tiny stroke a few weeks ago and is doing better. I posted a photo of him and I on Facebook yesterday:
"He's one of the most amazing men in my life. Don't know what I'd do without him. I love him so much."

Anyways I don't know much else. I hope all my fellow CFers are preparing for winter. Getting their flu shots, and doing their therapies so we can all avoid hospital stays this year :) I will update after my dr appt next week. Have a good rest of the week. 

~God Bless