Friday, December 23, 2011
Love and God Bless.
Friday, December 9, 2011
Sunday, November 27, 2011
I forgot to take a picture of my coach purse, but i'll try to remember. I love that to. It's just a simple brown purse with purple inside :) It's a little older but I don't mind.
Also, last Wednesday my oldest sister got engaged. I'm so happy for her and her fiancee.
Anyways, i'm getting ready to leave Wednesday night for Florida. My parents qualified for a promotion with their business so we're going to Florida by our friends house, and going shark fishing on their yacht(possibly) and visiting, and then going to visit with my grandma and grandpa who live down their.
So, I will try post either before I leave or when I get back and share some pictures. Hope everyone's well. Love and ~God Bless
Friday, November 18, 2011
Now for details. On my birthday I had to get up early(can you believe it) and we had to get on the road. I opened some of my presents from family, I got some money, and my very first Coach purse :) I was so excited. It's pretty awesome if I do say so myself. It's brown, with a buckle, and the inside is purple.
Then we get on the road, I had no idea why until we went up the ramp on the exit my dad took.(it was the exit where my new car was). Sure enough, my dad surprised me by getting me my new car on my birthday. So then we drove it home, went to my grandparents, dropped my car off at home and back to town we went.
Then we did some shopping(clothes of course) but not without going to Starbucks first, (My dad loved being the chofer vs having to actually go into every store(I only went to 2 stores). Since it was my birthday I got a Venti Iced Salted Caramel Mocha :) yum-o.
Then it was time for my birthday supper. We went to Olive Garden, an Italian restaurant and ate till we almost tipped over haha. I had a great birthday. Truely awesome, and now i've learned that my dad loves pulling off surprises. It was the first time there was nothing scheduled on my birthday.
So I will post pictures of my new car soon, and of my new coach. I hope you all have a wonderful day. ~God Bless
Monday, November 7, 2011
I want to do a little post about my baby. My Little Man. My Mini Yorkie named Beauregard. We all call him Bo. He is 2 years old, and we've had him for 2 years as of last month(October). He is the best.dog.ever. I love him so much. As I type this he's taking his afternoon nap :) He LOVES taking walks. He loves playing with his numerous amount of toys, and he loves cuddling. He sleeps with me every single night. He's awesome.
For Christmas i'm hoping to get him a new carseat. Yes, my dog has a carseat, he goes in it in the car, it keeps him safe. I want to get him a black one, and personalize it in red letters to say "Little Man". That is his nickname that has stuck since we've gotten him. So, I want to share a few pictures of my "Little Man". Hope you enjoy! ~God Bless
Sunday, October 30, 2011
*Got the Flu Shot :)
*Started my 28 days of Tobi
*Went to Ohio
*Spent time with family in Illinois
*Took my baby to get a haircut(my Yorkie, Bo)
*Been enjoying life
*Enjoyed the last few days of nice weather
*Put money down on a new vehicle :)
& most importantly...
If anyone knows me, normally in October I get sick and sometimes go into the hospital. Well i'm still really healthy, and I'm going to try to shoot for a hospital free year!! If I can make it 7 more months, it will make 1 year since i've been in the hospital...fingers crossed.
I can't get sick this winter, there's to much exciting things going on. In December Me, My mom, My dad, and my baby are packing up the vehicle and heading to Florida for about a week or so. We're going to see our friends there, and possibly go on their yacht, and visit my grandma and grandpa down their also.
Also, in February sometime, we're going to Arizona for a couple days. I can't afford to get sick, and in 13 days it's my birthday. WOOHOO!! I'm so excited, but I'm most excited that I'm so healthy for being almost 17. Some people aren't as lucky. I'm so thankful for how healthy I am, and I thank God everyday for everything he's blessed me with.
Lastly, if you guys could, could you keep my friend Jordan in your prayers, she's 17 and has CF, we've become very good friends, she's in the hospital right now, you can visit her at her website: www.justbreatheforjay.com
Love you all...will write soon. ~God Bless
Sunday, October 2, 2011
Saturday, October 1, 2011
The total cost of a lung transplant includes several types of expenses, such as diagnostic tests, the costs of procuring and transporting donor organs, fees for the surgeon and the anesthesiologist, pre- and post-operative hospital care (including time spent in the intensive care unit, or ICU), and fees for prescription drugs. For example, the total cost of a single-lung transplant includes about $20,000 in evaluation fees, $41,000 to obtain and prepare a donor lung, $33,000 in physician's fees and $210,000 for the cost of the hospital stay. It also includes about $65,000 for follow-up care and $30,000 for immunosuppressive medications. All of these expenses may vary according to the particular medical provider, and the length of the hospital stay.
Resource:: online resource Transplant Living.
Just think about those numbers. It's INCREDIBLE!!! That is why we have fundraisers to raise money. The Cystic Fibrosis Foundation is not government funded, so it's up to us to raise money to find a cure! We MUST find a cure, SOON!!!!!!
On November 17th my parents are going to be climbing for a cure. I did last year, but i'm not going to due to the fact that there will be other CF people there, and I don't want to get sick, as I am currently at my healthiest, but I am still raising money for it.
So i'm asking, if you would please take the time to possibly make a donation to help us find a much need cure for CF. We can't lose anymore people to CF!! Here is a link you can go to to make donations. http://www.cff.org/LWC/dsp_DonationPage.cfm?Event=WIMEOT0411&alias=CFFORG421723Sch&lyrsrc=SNCD
Thanks so much!!! ~God Bless
Saturday, September 24, 2011
If any of you could help me I would greatly appreciate it. The reason for me wanting to do it, is I'm planning a project with all of my blog posts i've ever done.
I would appreciate it a lot if someone could help me :)
Thursday, September 22, 2011
The last few times I was at the doctor, I was at my healthiest. I am currently at my healthiest. I was asked how I've been staying at my healthiest, and all I can say is I haven't changed much. I had recently started Zithromax 3x a week 2x a day 250mg. When I was in the hospital in May, after I got better they started me on it because studies have proven that Zithromax & Tobi together(which i've been on for a few years 28 days on 28 days off), fight off psudemonous(spelling) which I grew in my last culture. I haven't grown it in a very long time. The CF foundation actually now suggests that once you grow psudemonous you go on Zithromax. So That is what I've started, and then I had made a new years resolution of not eating any McDonalds, Burger King, or Hardees(as i would eat them quite a bit) and I have felt an enormous difference. I've cut back on the soda, and i've started eating healthier. That is what i've changed and so far i've been my healthiest i've ever been. So maybe nutrition and what you eat makes a different along with excersising and doing VEST definetly! 2 times a day or more. That is how i'm staying my healthiest.
Wednesday, September 21, 2011
Tuesday, August 30, 2011
Thursday, August 25, 2011
Wednesday, August 17, 2011
Lastly I just wanted to let you all know, one of my great friends Jordan just came back from her Make~A~Wish trip. She went to the beautiful island of Hawaii!
And on a sad note, last week Tuesday another CFer lost her battle with CF. She was 21 years old. Breathe Easy Ashley!
Will try to blog more frequent! Hope all of you are doing well. God Bless
Saturday, July 23, 2011
Monday, July 18, 2011
Wednesday, June 8, 2011
Wednesday, June 1, 2011
Tuesday, May 31, 2011
Okay, so here is the picture I've been promising for ohh, i don't know--almost 2 weeks. Yes i've been slacking. This is the FIRST time ever i've had a PICC line without stitches. It's very different, but it's a new experience :) Well just a quick update, i do feel better, i go back to the doctor Friday and we'll go from there. So far i've been on IV antibiotics for 2 weeks and 2 days. Loving my PICC. :) Soo, anyways I will try to blog more from now on, things have just been crazy around here--in a good way :) I hope everyone had a great Memorial Day and honored those who have fought for our country and are serving our country to make it a better place. I hope everyone remembers Freedom isn't Free!!! ~God Bless
Wednesday, May 25, 2011
6:00 a.m.--1 IV med Ceftaz(mom hooks up that one)
10:00 a.m.ish--Eat breakfast, take vitamin, vitamin D, omeprazole, bactrum, enzymes, advair, flonase, VEST, inhaled albuteral, inhaled pulmozime, inhaled hypertonic saline.
11:00 a.m.ish--Try to start school by then or sooner :)
2:00 p.m.--1 IV med Ceftaz, Bactrum
3-4 p.m.--somewhere between there I do VEST, inhaled albuteral, inhaled hypertonic saline.
8:30 p.m.--1 IV med Levaquin, Bactrum, VEST(try to start around this time, sometimes I do, other times I don't)
10:00 p.m.--1 IV med Ceftaz.
So that is my new routine, probably for another week or so. I go to the doctor next week for a follow up, so I will post an update on that, and I will try to post before that. And I promise a picture of my PICC line. Love you all!! ~God Bless
Wednesday, May 18, 2011
Monday, May 16, 2011
Sunday, May 15, 2011
Here are some pictures. Enjoy!!! This room is very very huge! Larger than most hospital rooms. The keyboard is so if I don't want to watch TV anymore, I can use the keyboard with the TV and use the TV as my computer screen. Talk about FB on steroids :) and another cool feature is that i have these cool neon lights on the ceiling and i can choose from 9 colors to make it, and the curtons are electric, so you have to push a button to get them to go up, or down. Definetly having that feature in my future house :) well i'm off to take a nap. Update soon. Love ya! ~God Bess
Friday, May 13, 2011
So, we know who's on call this weekend, and we are supposed to call tomorrow and let them know what's going on. They have noted in my chart "may need to be admitted". Will update soon! Thanks for all the messages, and your thoughts and prayers, it means a lot. Love you all. ~God Bless
Thursday, May 12, 2011
Tuesday, May 10, 2011
So keep me in your thoughts and prayers, and whatever shakes out shakes out. No big deal. Just all part of the life of having CF, we go to the doctor, sometimes the hospital for a week(s) and then we just continue to live our normal day to day life. Honestly it has become a routine for me.
So what's a post w/o pictures: here's what my hospitals looks like that I go to and have gone to, and just a cute picture just because :)
This is Fairview(where I used to go to,
and will go back to when I'm an adult).
This is my new hospital that i now go to
the clinic is somewhere else but this is the
new addition and the hospital-the rooms
look huge from the pictures, and are very
cool, and i believe that is all glass. And below
is of the front enterance-different view.
And last but not least, a picture of my baby, who just got a haircut last week and looks like this again :) If I get admitted I will miss him like crazy! He is the light of my life. I just love him so stinkin much! I mean who can't love this face?
I will keep everyone posted. Have a great day. ~God Bless
Saturday, May 7, 2011
I just want to say Happy Mothers Day to all you wonderful mothers out there. But, I want to say a very special Happy Mothers Day to my very special mommy :) She is always there for me, she is always there when I am sick, she stays with me in the Hospital, she listens when I need someone to talk to, we laugh together, dream together, disagree together(sometimes more than we should), we have much fun together, and we live life together while making memories. Sure we may have out disagreements sometimes more than we should, but hey-we're human, and we are almost the EXACT same personality-so they clash, but in the end we forgive each other or just let the silly arguments go to rest, and all in all we love each other. I love my mom more than she will ever know. She is my friend, my mom, my home nurse :) but more importantly she is my hero, and I thank her very much for everything she does for me. I love with the bottom of my heart. Forever and Always, she will always be my mommy :) Happy Mothers Day Mom. I love you with all my heart!
p.s. this picture is 2 years old. I had just came out of the hospital(notice the PICC cover) :)
Sunday, May 1, 2011
May is Cystic Fibrosis awarness month. The official "color" for CF is purple. So in honor of CF awarness I decided to change my profile picture on FB to a purple rose. This is the month we honor all those with CF who have passed away, have had lung transplants, and are still thriving, and still alive :) hehe! CF awarness is such a special place for me. I love honoring those who now "Breathe Easy", and have lost their battle with CF. We have lost such wonderful beautiful people. I pray for them and their family's each and everyday. Those who have had transplants, I pray for them every day, and am so thankful that they were able to have a second chance at living out their wonderful life, living out their dreams, leaving their legacy!!!!
So this month, if you find it in your hearts, keep CF Awarness in your prayers. <3 <3 <3 you all!!!
Monday, April 25, 2011
Here are 2 pictures that show pretty healthy lungs and pretty sick/damaged lungs:
**these are pretty healthy lungs**
I don't know about any other CFers out there, but I think that our lungs seriously know how to tell time...isn't around the same time of year, we get the same routine cold, sometimes get put on the same routine meds, sometimes get put in the hospital at the certain routine time...it starts a trend, and tends to get real old-REAL QUICK!
I have been very very very fortunate to be 7 1/2 months HOSPITAL FREE!!! I am doing my best to try to keep myself healthy, altering my Tobi ever 30 days on every 30 days off. Routine.
Well my mom and dad thought I was catching something, so I had a perscription in case I got sick on my Make~A~Wish trip(which I didn't) and it was for a 14 day use of Bactrum. So I am currently on Bactrum. I feel great, feel very good, don't feel sick-but for anyone who knows me and my body, I can feel amazing, have no lung crackles and sound great when the dr listens to me, and then have an Xray and I have the worst case of pnemonia ever. Crazy I know. It happened in August 2009. The pnemonia was so bad they didn't want me to travel to my specialist in Minnesota so it was my first stay at my local dr. I felt great...HAHA...anyways if your super sick and feel good it helps you get better quicker cause you're not so rundown.
Anyways, this is just a little bump in the road, time to do more VEST, more excersise, and start my 1/2 mile to 1 mile run everyday again(the weather here in Wisconsin should FINALLY start getting nicer) but I'm not worried one bit....I WILL fight this. I WILL NOT go into the hospital. I WILL do everything in my power to stay healthy. I WILL FIGHT THIS FIGHT, AND I WON'T LET GO!!!!!!!!!
Have a great day ~God Bless
p.s. we're in crunch time for CF donations for the walk, if you are at all possible please donate. Thanks so much...the whole CF community appreciates it so much, and you're helping make more tomorrows everyday. Here's my donation website: http://www.cff.org/Great_Strides/PaigeSchreiber6672
Sunday, April 24, 2011
Second...what happens when someone wants a picture of me and my baby(dog-who doesn't like cameras?) Photo Shoot perhaps?
Yup...it "only" took 5 pictures to finally get a favorite :)
Do you notice the sort-of matching clothes :)
Have a great day, and if you haven't already donated to my walk please do so at the link below, or message me. Thanks ~God Bless
Monday, April 18, 2011
Wednesday, April 13, 2011
Monday, April 11, 2011
Wednesday, March 30, 2011
Saturday, March 26, 2011
(I know this isn't the best picture. It's hard to see but there's 2 different water colors here, a dark and almost teal color...breathetaking)
Thursday, March 10, 2011
Well this will be my last post for a while. Love you all, thank you all for the wonderful calls, texts, and messages wishing me and my family a wonderful trip.!! I love all of you, to my fellow CFers...stay healthy and "just breathe". ~God Bless
'just another day in paradise'
Monday, March 7, 2011
Here's a link to a Rascal Flatts song off their new album: Nothing Like This. I hope you really listen to the words. Enjoy!!!
Thursday, March 3, 2011
Click the link below and this will take you to some pictures I uploaded earlier. Enjoy!!!
Wednesday, February 23, 2011
Saturday, February 19, 2011
Thursday, February 17, 2011
TOP 10 ISLANDS TO SEE BEFORE YOU DIE:
3) Easter Island
6) **Bora Bora**
7) Key West
10) Palm Island Dubai
I hope you enjoy the list. Notice the *'s :)
1 down 9 to go!! Maybe this will interest you and you will have to visit some of them. I know it interested my parents and I. Have a great day!!
Wednesday, February 16, 2011
I'm getting so excited. Later this week or early next week my wish granters, Scott and Donna, will be calling to get together to go over itinerary(sp?) and events, activities, and plan my wish party :) I am beyond excited.
My mom and I already scheduled our Mani/Pedi's, and my sister and I are going one day for her to get a mani/pedi and me get a pedi. Mom and I are going by a friend of hers so she's getting her fake nails-I love my mom in fake nails :) and a pedi, and i'm just getting a pedi by her.
So we're down to 22 1/2 days and counting patiently. Will keep everyone posted, and I'm just sooo stinkin excited to go to Bora Bora for a trip of a lifetime, and I am definetly coming back with an original black pearl and then a friend of mine, Jill, is going to help me design a ring to put it into. I'm so stoked!!! :) Have a great day/night :)
Sunday, February 13, 2011
Thursday, February 10, 2011
So have a great day, and a picture...just because ;)
Wednesday, February 9, 2011
So here's what my clinic/hospital look like(there's a bunch more that is not showing on the picture, it's a school campus, research center, clinic, and hospital). Next time I go back to the doctor in May, I will be at a different location(1 exit up) and at a different clinic/hospital. The pediatric center joined with a different clinic(which is great cause then there's more specialists, more dr's, more CF teams etc..) So this was my last visit to this place, until i'm an adult, then I get to go back.
Tuesday, February 8, 2011
Make~A~Wish update; I got presents in the mail for Valentines day :) I got a journal, body gel, and a book mark that says "Bon Voyage". They will be contacting us in the next couple weeks to plan my going away party :) So other than that, talk to ya tomorrow...bye
Friday, February 4, 2011
It looks better in person...I spent $48 the most i've ever spent for anything(besides my car). But hey, if it's for Bora Bora it's alright :)
Wednesday, February 2, 2011
Here's some photos from that day.
Me with one of the Cows :)
Me and Mama Red--Take 1
Her heads to big--Take 2
Take 3--Perfect :)