I have so many thoughts on what I could write(and what I will share soon) but I simply wanted to share what I wrote on my Facebook page today(The Joys of Having CF).
My thoughts I shared “in the moment” as I saw the news and my doctor came into my hospital room.
I had also shared the FDA website as reference to the post.
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A DAY TO REMEMBER!!
THIS was APPROVED TODAY! There are no words other than Thank you! to all the doctors, researchers, and everyone who donates.
The difference this will make in not only mine, but everyone’s life who this will help! For 25 years! this is what we’ve been waiting for. It’s not a cure-but this is sure one of the biggest steps towards one. I can not wait to see how this will affect life.
Being in the hospital while this is approved(so close to my birthday)-my doctor came in less than an hour after news broke to let me know. He wanted to make sure I was the first to know.
I feel so blessed to have such an amazing doctor!
Please pray that all of us who qualify-also have insurance that will let us get this medicine!
Next to the day we can receive it-this is a day to remember!!!
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Soon I will do an update on my latest 14 day hospital stay but this news was more important and I wanted to share my thoughts on “approval day”.
We simply now have to wait for the insurance process to start-which could be months-but there is a light that we all can look forward to.
For now-Thank you to everyone-are fight is far from over but we are making great strides in the right direction every day and we need to celebrate these victories.
~God Bless
Paige
