First, I'm still on my steroid regiment for my sinus polyps. This has been for almost three weeks now. It was going good at first, then i developed a cough...bad cough. Coughing tons of junk up. The only thing I could think of was maybe I had some kind of infection and the steroid just irritated it. So for the last few weeks I've been dealing with that.
Then comes last week. Monday i woke up at 3 a.m. throwing up every little bit. I figured I was just coughing up so much stuff that even though I tried to spit it all out, it was affecting my stomach.
Any ways after Monday I just wasn't myself. But I went back to work...very weak, not feeling good, not eating much. Wednesday was a bit better. Then Thursday I woke up at 5:30 for work, and I had a huge shooting pain in my upper right shoulder area. It was so bad I could hardly get out of bed. After I got up I couldnt stop coughing and I started coughing up blood. Not just steaks, chunks. That's when I knew, this isn't right. I called into work, called my doctor, and was able to get an appointment.
Going into this appointment I had no idea of what was going to happen, I kind of just wanted to make sure nothing worse was wrong. I got to the doctor, did blood work, did X-Ray, and saw my local nurse practitioner(the most wonderful lady ever).
She then came into the room and said, "your white counts are a little high, there's new spots on the X-Ray, and I don't feel comfortable sending you home. Are you okay with staying?"
My mom and I looked at each other, and I said "yeah". What am I going to say, no?
This is a part of CF...things unexpectedly happen. You don't control it. So I came into the hospital, Friday I went down for a PICC line. I was promised the procedure would only take 10 minutes. Since last time was 3+ hours. They told me they have this new doctor, and he also specializes in veins. I was apprehensive but was on board. When I went down for the procedure once they started they discovered I had a blockage in my arm(likely the issues from last time), so he asked me if I was ok if he fixed it. I said of course...and he assured me it wouldn't hurt...so then I had an angioplasty. It worked, didn't hurt, and after that the PICC took 10 minutes. Start to finish less than an hour. The doctor felt bad and said if I would have had an angioplasty a few times before I probably wouldn't have that issue. He was amazing.
So here I am, it is Tuesday night. Waiting to hear back on culture results(possibly tomorrow) then I get to come home on home IV's for 2-3 weeks. We've been trying to get the correct IV meds, and the best plan of attack before I bust out.
We've also adjusted a few medicines that are resistant of a few bugs I'm growing.
I've been extremely happy with my hospital stay, the care and concern is amazing, especially for not being a CF clinic. They really care about making sure the best plan is in place all the way around.
I can honestly say I haven't really felt this good in months. I must have had something growing and just didn't realize. I am so excited to continue the next few weeks and get my lungs healthy.
And in honor of CF awarness month I made it 10 months without an admission.
In the end as I finish writing tonight, I really think this is Gods sign to me to stop and slow down. The last few months have been a little crazy, and at some point you have to just slow down, and I think this is Gods secret plan...and its exactly what I'm going to do. I'm stopping, relaxing, slowing down, and focusing on my health. My number one priority.
I will update soon! Thank you for all the thoughts and prayers!