The Joys of having CF: In honor of CF Awareness Month

Sunday, May 4, 2014

In honor of CF Awareness Month

In honor of CF awareness month I thought I'd share a few photos of things us CFers sometimes go through.

Call me crazy but somehow I enjoy getting IV's, and i enjoy having PICC lines. Thankfully I've been IV free for 21 months. I can't believe it. It's been so long since I've been this healthy. I'm so thankful.

Also here's the link to the video I made of me getting a PICC line http://youtu.be/xOXUVqvmzYQ

Will write soon. Tomorrow I have a doctor appt.

~God Bless

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A Powerful Statement

"I was asked once, "If you could tell the world one thing about Cystic Fibrosis, what would it be?" And it is this. That CF hurts. It hurts physically when it feels like sandpaper is scraping your lungs with every breath. It hurts mentally to plan for and get excited about a life you may never lead. It hurts to fall in love because ...CF can be an extraordinary burden on anyone who is not meant to deal with it, most times resulting in rejection and loneliness. It hurts to watch dozens of friends lose this fight that they never deserved or asked for. But most of all, it would hurt to not have been blessed with the chance to experience life through a CFer's eyes: No love is half-given, no day is not lived to its fullest and NOTHING is taken for granted." ~posted by a fellow CFer